Resources

Advocacy

General Resources

  • Next Avenue: 10 Things You Can Do to Support Aging With Dignity and Independence – Start making a difference in your neighborhood
  • Next Avenue: 10 Things Every Family Should Know About Aging With Dignity and Independence – Aging with dignity and independence is the ability to live life to its fullest in the place you call home, regardless of age, illness or disability.
  • Kaiser Health News – Look Up Your Hospital: Is It Being Penalized by Medicare? – You can search by hospital name or location, look at all hospitals in a particular state and sort penalties by year. Under programs set up by the Affordable Care Act, the federal government cuts payments to hospitals that have high rates of readmissions and those with the highest numbers of infections and patient injuries. For the readmission penalties, Medicare cuts as much as 3 percent for each patient, although the average is generally much lower. The patient safety penalties cost hospitals 1 percent of Medicare payments over the federal fiscal year, which runs from October through September.
  • Coalition for Serious Medical Care – Massachusetts e_MOLST Web Portal – The e-MOLST Web Portal supports providers in engaging in advance care planning with patients in the current, largely virtual care world. On the portal, clinicians and patients or surrogates can remotely complete and digitally sign MOLST forms. To sign up for the portal, send full name, licensure/role, institution, work address, work email, and phone number to: masssupport@vyncahealth.com. You will receive an email invitation to create a password and log in within two business days. This is a work in progress; feedback is requested.
  • Pioneer Network – Pioneer Network is the national leader of the culture change movement, helping care providers to transition away from a medical, institutional model of elder care to one that is life affirming, satisfying, humane and meaningful. Pioneer Network advocates for a culture of aging in which individual voices are heard and individual choices are respected.

Long Term Services and Supports

  • AARP – Long Term Services and Supports State Scorecard for Massachusetts – The fourth edition of the LTSS State Scorecard, released in fall 2020, takes a multi-dimensional approach to measure state-level performance of LTSS systems that assist older adults, people with physical disabilities, and family caregivers. Unlike many other rankings that focus on a particular aspect of LTSS system performance, the Scorecard compares state LTSS systems across multiple dimensions, reflecting the importance and interconnectedness each has on the overall LTSS system.
  • Centers for Medicare and Medicaid Services – Long-Term Services and Supports Rebalancing Toolkit – The toolkit provides background information, resources, and promising practices that support state efforts to rebalance Medicaid long-term services and supports (LTSS) in favor of home-and community-based services (HCBS).
  • The National Consumer Voice for Quality Long-Term Care – Leading national voice representing consumers in long-term care issues.

Assisted Living

Behavioral Health

Covid-19

  • Massachusetts Department of Public Health – Crisis Standards of Care Planning Guidance for the COVID-19 Pandemic – This Guidance provides direction for the triage of critically ill patients in the event that the public health emergency caused by the COVID-19 pandemic creates a demand for in-patient critical care resources that outstrips supply. It seeks to ensure that every patient has equitable access to care from which they might benefit, and that tragically difficult decisions about the allocation of scarce in-patient care resources must be grounded only on evidence-based criteria that are clear, transparent, and objective; biological factors related only to the likelihood and magnitude of benefit from the medical resources; and should at all times minimize inequitable outcomes.

Home and Community

Housing

Nursing Homes

  • Institute for Healthcare Improvement (IHI) – COVID-19 Rapid Response Network for Nursing Homes – Requires free registration – The Institute for Healthcare Improvement, with support from The John A. Hartford Foundation, offers the COVID-19 Rapid Response Network for Nursing Homes to support nursing home leadership, staff, residents, families, and communities impacted by the COVID-19 pandemic. Access to webinars, online and print resources, links to relevant sites.