Resources

Advocacy

Aging

  • USAging represents and supports the national network of Area Agencies on Aging and advocates for the Title VI Native American aging organizations that help older adults and people with disabilities live with optimal health, well-being, independence and dignity in their homes and communities.
  • National Center on Elder Abuse – The NCEA provides the latest information regarding research, training, best practices, news and resources on elder abuse, neglect and exploitation to professionals and the public. First established by the U.S. Administration on Aging (AoA) in 1988 as a national elder abuse resource center, the NCEA was granted a permanent home at AoA in the 1992 amendments made to Title II of the Older Americans Act. The NCEA is one of 27 Administration on Aging-funded Resource Centers. Research shows that as many as two million elders are abused in the United States. The Administration on Aging recognizes that as a government, as a society and as individuals, we must increase our efforts to ensure that all older adults age with dignity and honor.
    • NCEA – Research – Synthesize and disseminate high quality research on elder abuse to encourage the translation of research into practice.
    • NCEA – Practice – Technical assistance tools, innovative approaches, and national resources to aid in the provision of direct services.
    • NCEA Public Policy – Understand, evaluate, and inform policy development to ensure public policy is better aligned with effective practices.
    • NCEA Education – Training and awareness materials to further the field for those interested in elder abuse identification and prevention.
  • Administration on Community Living – Profile of Older Americans 2020 – The Profile of Older Americans is an annual summary of critical statistics related to the older population in the United States. Relying primarily on data offered by the U.S. Census Bureau, the Profile illustrates the shifting demographics of Americans aged 65 and older. It includes key topic areas such as income, living arrangements, education, health, and caregiving. The 2020 Profile includes special sections on COVID-19 and mental health. Excel data file and graphic display are available. Previous year profiles available 2005 through 2019.
  • Administration on Community Living – Commit to Connect – Resources for the aging and disability networks – Combating social isolation and loneliness in all communities
  • Department of Health and Human Services – User Guide for Older Adults Toolkit – This material is intended for all organizations that communicate directly with the older adult community.
  • The Green House Project – The Green House Project partners with senior living providers to create homes for older adults that demonstrate more powerful, meaningful, and satisfying lives, work, and relationships. They implement culture change as well as dementia education and training to create person-directed, relationship-rich living environments.
  • Hebrew Senior Life Research – Areas of focus:
    • The Aging Brain
    • Mobility and Falls
    • Palliative Care Research
    • Musculoskeletal Research
  • Joint Center for Housing Research of Harvard University – Aging – With the rapid aging of the US population, the need for affordable, accessible, and supportive housing suitable for older adults is set to increase. Research in this area focuses on the demographics of the older population; the supply of housing available to adults with functional limitations and disabilities; affordability problems; the links between housing, health, and community services; and the public and private responses to these challenges.
  • Institute for Healthcare Improvement (IHI) – COVID-19 Rapid Response Network for Nursing Homes (Requires free registration) – IHI, with support from The John A. Hartford Foundation, offers the COVID-19 Rapid Response Network for Nursing Homes to support nursing home leadership, staff, residents, families, and communities impacted by the COVID-19 pandemic. Access to webinars, online and print resources, links to relevant sites.
  • Massachusetts Healthy Aging Collaborative – Working to make Massachusetts a national leader in vibrant and age-friendly communities. The Collaborative has identified a two-part model to promote healthy aging and the delivery of elder services in Massachusetts through evidence-based programs and other health promotion programs to support healthy communities. Programs and services should reflect the diversity and heterogeneity of older adults across the state.
  • Navigating Aging – Navigating Aging focuses on medical issues and advice associated with aging and end-of-life care, helping America’s 45 million seniors and their families navigate the health care system. Navigating Aging is part of the Kaiser Health News website.
  • Older Adults Technology Services – Find Low-Cost Internet Service in Your Area
  • Open Doors – OPEN DOORS is a network of artists, activists and advocates motivated by community building, gun violence prevention and disability rights. At the center of this network are the Reality Poets—a group of current and former residents of an NYC long-term care facility, who are bonded through a shared mission to spread a message of realness, resilience, and healing.
  • Voices for Seniors – The mission of VoicesForSeniors is to significantly improve the quality of life for our most vulnerable, elderly communities through grassroots initiatives and advocacy for protective legislation and reform. VoicesForSeniors uses online resources and social media to change the public’s perspective on senior citizens, and to educate others about the shortcomings of nursing homes and current protective legislation.
  • World Health Organization (WHO) – Ageing – Comprehensive website with these components: Factsheets; Guidelines; Databases; WHO Resolutions; WHO Teams

Behavioral Health

  • Judge David L. Bazelon Center for Mental Health Law – The mission of the Judge David L. Bazelon Center for Mental Health Law is to protect and advance the civil rights of adults and children with mental illness or developmental disabilities. We envision a society where Americans with mental disabilities live with autonomy, dignity, and opportunity in welcoming communities, supported by law, policy, and practices that help them reach their full potential.
  • Substance Abuse and Mental Health Services Administration – Disaster Distress Helpline – SAMHSA’s Disaster Distress Helpline provides 24/7, 365-day-a-year crisis counseling and support to people experiencing emotional distress related to natural or human-caused disasters. The Distressline now offers support via videophone for American Sign Language users.

Caregiving

  • AARP Family Caregiving Resource Center – Extensive site with resources and links.
  • Administration on Community Living – Commit to Connect – The Commit to Connect campaign is a public-private partnership that is: building a nationwide network of champions to collaborate on solutions and to reach more people; developing an online, consumer-focused tool, or clearinghouse, that matches people who are socially isolated to customized suggestions for resources that can help them connect and engage; establishing critical partnerships in communities and across all levels of government; sharing successful initiatives that can be implemented in communities across the country.

Covid-19

Demographics / Statistics

  • Administration on Community Living – Profile of Older Americans 2020 – The Profile of Older Americans is an annual summary of critical statistics related to the older population in the United States. Relying primarily on data offered by the U.S. Census Bureau, the Profile illustrates the shifting demographics of Americans aged 65 and older. It includes key topic areas such as income, living arrangements, education, health, and caregiving. The 2020 Profile includes special sections on COVID-19 and mental health. Excel data file and graphic display are available. Previous year profiles available 2005 through 2019.
  • Annual Disability Statistics Compendium – The Annual Disability Statistics Compendium, Annual Disability Statistics Supplement, and State Reports for County-level Data are web-based tools that pool disability statistics published by various federal agencies together in one place. When working on legislative and other matters relating to persons with disabilities, the Compendium, Supplement, and State Reports make finding and using disability statistics easier. The Annual Disability Statistics Supplement provides hundreds of additional tables breaking down the content found in the Compendium by age, gender, and race-ethnicity. The State Reports for County-level Data provide county-level statistics for each state complimenting the content found in the Compendium and Supplement.
  • Joint Center for Housing Research of Harvard University – Aging – With the rapid aging of the US population, the need for affordable, accessible, and supportive housing suitable for older adults is set to increase. Research in this area focuses on the demographics of the older population; the supply of housing available to adults with functional limitations and disabilities; affordability problems; the links between housing, health, and community services; and the public and private responses to these challenges.
  • Peterson-Kaiser Family Foundation Health System Tracker – How well is the U.S. health system performing? Explore a variety of indicators of health spending, quality of care, access, and health outcomes.
  • U. S. Census Bureau – Coronavirus (COVID-19) Pandemic Data Hub
  • U. S. Census Bureau – Community Resilience Estimates – Community resilience is the capacity of individuals and households to absorb, endure, and recover from the health, social, and economic impacts of a disaster such as a hurricane or pandemic. When disasters occur, recovery depends on the community’s ability to withstand the effects of the event. To facilitate disaster preparedness, the Census Bureau has developed new small area estimates, identifying communities where resources and information may effectively mitigate the impact of disasters
  • World Health Organization (WHO) – Ageing – Comprehensive website with these components: Factsheets; Guidelines; Databases; WHO Resolutions; WHO Teams

Design

  • Center for Inclusive Design and Innovation – CIDI’s mission is to improve the human condition through equal access to technology-based and research-driven information, services, and products for individuals with disabilities
  • Community Aging in Place – Advancing Better Living for Elders (CAPABLE) – CAPABLE addresses both function and cost. CAPABLE is a program developed at the Johns Hopkins School of Nursing for low-income seniors to safely age in place. The approach teams a nurse, an occupational therapist, and a handy worker to address both the home environment and uses the strengths of the older adults themselves to improve safety and independence. People with functional limitations and chronic conditions are more than four times more likely than the general population to be among the 5 percent costliest users of health services.
  • The Green House Project – The Green House Project partners with senior living providers to create homes for older adults that demonstrate more powerful, meaningful, and satisfying lives, work, and relationships. They implement culture change as well as dementia education and training to create person-directed, relationship-rich living environments.

Disabilities

  • Annual Disability Statistics Compendium – The Annual Disability Statistics Compendium, Annual Disability Statistics Supplement, and State Reports for County-level Data are web-based tools that pool disability statistics published by various federal agencies together in one place. When working on legislative and other matters relating to persons with disabilities, the Compendium, Supplement, and State Reports make finding and using disability statistics easier. The Annual Disability Statistics Supplement provides hundreds of additional tables breaking down the content found in the Compendium by age, gender, and race-ethnicity. The State Reports for County-level Data provide county-level statistics for each state complimenting the content found in the Compendium and Supplement.
  • Center for Dignity in Healthcare for People with Disabilities – The Center for Dignity in Healthcare for People with Disabilities (CDHPD) is a virtual center with the goal of identifying and reducing life-limiting healthcare inequities for people with intellectual and developmental disabilities (IDD) by improving access to anti-discrimination medical protocols. The Center develops resources for healthcare professionals to understand the civil rights and support the needs of Americans with disabilities as they access routine and lifesaving care; and engage people with intellectual and developmental disabilities and their families to learn more about advocacy related to healthcare discrimination.
  • Center for Inclusive Design and Innovation – CIDI’s mission is to improve the human condition through equal access to technology-based and research-driven information, services, and products for individuals with disabilities.
  • Administration on Community Living – Commit to Connect – Resources for the aging and disability networks – Combating social isolation and loneliness in all communities
  • Disability Health Research Center at Johns Hopkins University – Shifting the paradigm from ‘living with a disability’ to ‘thriving with a disability’ and maximizing the health, equity, and participation of people with disabilities.
  • Georgia Institute of Technology Center for Inclusive Tech Design & Innovation – Archive of COVID-19 Accessible Materials for People with Disabilities Project – broadcast recordings, live transcripts, and other support documents
  • National Council on Disability – NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities.
  • National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) – NIDILRR is the federal government’s primary disability research agency. Its mission is to generate new knowledge and to promote its effective use to improve the abilities of individuals with disabilities to perform activities of their choice in the community, and to expand society’s capacity to provide full opportunities and accommodations for its citizens with disabilities.
  • National Rehabilitation Information Center (NARIC) – The National Rehabilitation Information Center (NARIC) is the library of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NARIC collects, catalogs, and disseminates articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILRR which funds research projects on a wide range of issues including technology, health and function, independent living, and capacity building.

Health

  • TheMighty.com – The Mighty is a comprehensive website, dealing with many kinds of disabilities and chronic health issues for all ages. Included are schedules of upcoming virtual events. Other features include information on how to use the website, including writing a column on any disability, rare disease, chronic illness, etc. Some interest groups include: Ask a Bipolar Advocate; Chronic Illness Support Group; Navigating PTSD. Access to the website is free; to get email alerts on new articles or events happening, a free subscription is required.
  • Center for Dignity in Healthcare for People with Disabilities – The Center for Dignity in Healthcare for People with Disabilities (CDHPD) is a virtual center with the goal of identifying and reducing life-limiting healthcare inequities for people with intellectual and developmental disabilities (IDD) by improving access to anti-discrimination medical protocols. The Center develops resources for healthcare professionals to understand the civil rights and support the needs of Americans with disabilities as they access routine and lifesaving care; and engage people with intellectual and developmental disabilities and their families to learn more about advocacy related to healthcare discrimination.
  • Coalition for Serious Medical Care – Massachusetts e-MOLST Web Portal – The e-MOLST Web Portal supports providers in engaging in advance care planning with patients in the current, largely virtual care world. On the portal, clinicians and patients or surrogates can remotely complete and digitally sign MOLST forms. To sign up for the portal, send full name, licensure/role, institution, work address, work email, and phone number to: masssupport@vyncahealth.com. You will receive an email invitation to create a password and log in within two business days. This is a work in progress; feedback is requested.
  • Administration on Community Living – Commit to Connect – Resources for the aging and disability networks – Combating social isolation and loneliness in all communities
  • Convergence Center for Policy Resolution – Care for Older Adults
  • The Conversation Project – What Matters to Me: A Guide to Serious Illness Conversations – A workbook designed to help people with a serious illness get ready to talk to their health care team (doctor, nurse, social worker, etc.) about what is most important to them — to make sure that they get the care they want.
  • Conversations for Caring – Conversations for Caring offers regional training for both professional and volunteer providers, who serve older persons, Veterans, persons living with disabilities of all ages, and their families. Monthly trainings address some of the most challenging issues facing providers who serve in community services settings and include but are not limited to presentations on addiction, mental/behavioral health, trauma, provider self-care, and homelessness. Trainings are offered by area service providers as well as professional members of medical establishments, regional colleges, and universities. Class participants can earn Continuing Education Credits in Social Work, Nursing, Licensed Alcohol and Drug Abuse Counselor (LADC), and Northeast Emergency Medical Services (NEEMS).
  • Days for Girls – Mission: providing powerful menstrual health solutions to help menstrual women and girls break the cycle of poverty and live their lives with dignity.
  • Honoring Choices Massachusetts – Health Care Planning Guide: A Road Map for Good Care Over Your Lifetime
  • Institute for Healthcare Improvement (IHI) – COVID-19 Rapid Response Network for Nursing Homes (Requires free registration) – IHI, with support from The John A. Hartford Foundation, offers the COVID-19 Rapid Response Network for Nursing Homes to support nursing home leadership, staff, residents, families, and communities impacted by the COVID-19 pandemic. Access to webinars, online and print resources, links to relevant sites.
  • Kaiser Health News – Look Up Your Hospital: Is It Being Penalized by Medicare? – You can search by hospital name or location, look at all hospitals in a particular state and sort penalties by year. Under programs set up by the Affordable Care Act, the federal government cuts payments to hospitals that have high rates of readmissions and those with the highest numbers of infections and patient injuries. For the readmission penalties, Medicare cuts as much as 3 percent for each patient, although the average is generally much lower. The patient safety penalties cost hospitals 1 percent of Medicare payments over the federal fiscal year, which runs from October through September.
  • Massachusetts Healthy Aging Collaborative – Working to make Massachusetts a national leader in vibrant and age-friendly communities. The Collaborative has identified a two-part model to promote healthy aging and the delivery of elder services in Massachusetts through evidence-based programs and other health promotion programs to support healthy communities. Programs and services should reflect the diversity and heterogeneity of older adults across the state.
  • Agency for Healthcare Quality and Research (AHQR) – National Healthcare Quality and Disparities Reports – The National Healthcare Quality and Disparities Report presents trends for measures related to access to care, affordable care, care coordination, effective treatment, healthy living, patient safety, and person-centered care. The report presents, in chart form, the latest available findings on quality of and access to healthcare, as well as disparities related to race and ethnicity, income, and other social determinants of health. Includes state level snapshots and various chartbooks. Report years available from 2003 through 2019.
  • Navigating Aging – Navigating Aging focuses on medical issues and advice associated with aging and end-of-life care, helping America’s 45 million seniors and their families navigate the health care system. Navigating Aging is part of the Kaiser Health News website.
  • The Network for Public Health Law – The Network for Public Health Law provides leadership in the use of law to protect, promote and improve health and health equity. They provide non-partisan legal technical assistance and resources, collaborating with a broad set of partners across sectors to expand and enhance the use of practical legal and policy solutions.
  • Peterson-Kaiser Family Foundation Health System Tracker – How well is the U.S. health system performing? Explore a variety of indicators of health spending, quality of care, access, and health outcomes.

Housing

  • Housing Navigator Massachusetts – A free online tool to search for affordable rentals statewide.
  • Community Aging in Place – Advancing Better Living for Elders (CAPABLE) – CAPABLE addresses both function and cost. CAPABLE is a program developed at the Johns Hopkins School of Nursing for low-income seniors to safely age in place. The approach teams a nurse, an occupational therapist, and a handy worker to address both the home environment and uses the strengths of the older adults themselves to improve safety and independence. People with functional limitations and chronic conditions are more than four times more likely than the general population to be among the 5 percent costliest users of health services.
  • The Green House Project – The Green House Project partners with senior living providers to create homes for older adults that demonstrate more powerful, meaningful, and satisfying lives, work, and relationships. They implement culture change as well as dementia education and training to create person-directed, relationship-rich living environments.
  • Joint Center for Housing Research of Harvard University – Aging – With the rapid aging of the US population, the need for affordable, accessible, and supportive housing suitable for older adults is set to increase. Research in this area focuses on the demographics of the older population; the supply of housing available to adults with functional limitations and disabilities; affordability problems; the links between housing, health, and community services; and the public and private responses to these challenges.
  • LeadingAge – Coronavirus Information for Affordable Housing
  • National Association of Social Workers – COVID-19 & Housing Resources
  • Visitability.org – Basic Access to Homes

Legal

LGBT

  • SAGE – Advocacy and Services for LGBT Elders – SAGE is the country’s largest and oldest organization dedicated to improving the lives of LGBT older people. Founded in 1978 and headquartered in New York City, SAGE is a national organization that offers supportive services and consumer resources to LGBT older people and their caregivers.

Long Term Services and Supports (LTSS)

  • AARP Long-Term Services & Supports State Scorecard – The fourth edition of the LTSS State Scorecard, released in fall 2020, takes a multi-dimensional approach to measure state-level performance of LTSS systems that assist older adults, people with physical disabilities, and family caregivers. Unlike many other rankings that focus on a particular aspect of LTSS system performance, the Scorecard compares state LTSS systems across multiple dimensions, reflecting the importance and interconnectedness each has on the overall LTSS system.
  • The Claude Pepper Center – Using information and data from multiple sources to help inform policy makers, researchers, teachers, the media and the public about the health, long term care and income security challenges confronting the nation’s older citizens.
  • Institute for Healthcare Improvement (IHI) – COVID-19 Rapid Response Network for Nursing Homes (Requires free registration) – IHI, with support from The John A. Hartford Foundation, offers the COVID-19 Rapid Response Network for Nursing Homes to support nursing home leadership, staff, residents, families, and communities impacted by the COVID-19 pandemic. Access to webinars, online and print resources, links to relevant sites.
  • Long Term Care Discussion Group – The Long-Term Care Discussion Group is a voluntary, independent group that meets for the purpose of educating the policy community on all facets of long-term care. The group convenes monthly presentations exploring long term care policy, research, and advocacy issues. Membership is free and open to all. Participants span the entire spectrum of the long-term care policy community, including federal agency and congressional staff, researchers, and representatives of a wide variety of stakeholder organizations. The new co-chair of the LTC Discussion Group is Pamela Nadash, Associate Professor of Gerontology at University of Massachusetts Boston, in the McCormack School of Policy & Global Studies and Fellow of the LeadingAge LTSS Center at UMass Boston. For more information or to be included on the distribution list, email: LTCDiscussionGroup@gmail.com.
  • Massachusetts Executive Office of Health and Human Services – ARPA Funding Reports – Strengthening Home and Community Based Services and Behavioral Health Services Using American Rescue Plan (ARP) Funding
    • Two reports posted
      • Summary of ARPA Request for Information Proposals
      • Massachusetts Strategy for Supporting Home and Community Based Services using American Rescue Plan Act (ARPA) Funding
    • On April 16, 2021, the Commonwealth issued a Request for Information (RFI) to gather broad feedback and ideas from the community on how to best utilize enhanced funding available through Section 9817 of the American Rescue Plan Act (ARPA). In response, 95 individuals and organizations submitted a total of 203 proposals across four defined Topic Areas:
      • Topic Area 1: Access to HCBS services and supports, 69 responses
      • Topic Area 2: Technology and infrastructure investments to strengthen HCBS, 41 responses
      • Topic Area 3: Initiatives that provide opportunities to promote HCBS and emphasize high-quality, person-centered care Promotion of HCBS, 26 responses
      • Topic Area 4: HBCS workforce development, including recruitment and retention strategies, 67 responses
  • PHI – PHI works to transform eldercare and disability services by fostering dignity, respect, and independence—for all who receive care, and all who provide it. As the nation’s leading authority on the direct care workforce, PHI promotes quality direct care jobs as the foundation for quality care.

Medicare / Medicaid

  • Kaiser Health News – Look Up Your Hospital: Is It Being Penalized by Medicare? – You can search by hospital name or location, look at all hospitals in a particular state and sort penalties by year. Under programs set up by the Affordable Care Act, the federal government cuts payments to hospitals that have high rates of readmissions and those with the highest numbers of infections and patient injuries. For the readmission penalties, Medicare cuts as much as 3 percent for each patient, although the average is generally much lower. The patient safety penalties cost hospitals 1 percent of Medicare payments over the federal fiscal year, which runs from October through September.
  • Centers for Medicare and Medicaid Services – Long-Term Services and Supports Rebalancing Toolkit – The toolkit provides background information, resources, and promising practices that support state efforts to rebalance Medicaid long-term services and supports (LTSS) in favor of home-and community-based services (HCBS).

Nursing Homes

Public Policy

  • The Claude Pepper Center – Using information and data from multiple sources to help inform policy makers, researchers, teachers, the media and the public about the health, long term care and income security challenges confronting the nation’s older citizens.
  • Coalition for Serious Medical Care – Massachusetts e-MOLST Web Portal – The e-MOLST Web Portal supports providers in engaging in advance care planning with patients in the current, largely virtual care world. On the portal, clinicians and patients or surrogates can remotely complete and digitally sign MOLST forms. To sign up for the portal, send full name, licensure/role, institution, work address, work email, and phone number to: masssupport@vyncahealth.com. You will receive an email invitation to create a password and log in within two business days. This is a work in progress; feedback is requested.
  • Institute on Community Integration – The Institute on Community Integration (ICI) at the University of Minnesota focuses on policies and practices that affect children, youth, and adults with disabilities, and those receiving educational supports through collaborative research, training, and information-sharing activities. ICI’s values are based on Inclusion; Diversity; Equity; Self-determination; and Data-informed practice and policy.
  • Massachusetts Department of Public Health – Crisis Standards of Care Planning Guidance for the COVID-19 Pandemic – This Guidance provides direction for the triage of critically ill patients in the event that the public health emergency caused by the COVID-19 pandemic creates a demand for in-patient critical care resources that outstrips supply. It seeks to ensure that every patient has equitable access to care from which they might benefit, and that tragically difficult decisions about the allocation of scarce in-patient care resources must be grounded only on evidence-based criteria that are clear, transparent, and objective; biological factors related only to the likelihood and magnitude of benefit from the medical resources; and should always minimize inequitable outcomes.
  • Massachusetts Executive Office of Health and Human Services – ARPA Funding Reports – Strengthening Home and Community Based Services and Behavioral Health Services Using American Rescue Plan (ARP) Funding
    • Two reports posted
      • Summary of ARPA Request for Information Proposals
      • Massachusetts Strategy for Supporting Home and Community Based Services using American Rescue Plan Act (ARPA) Funding
    • On April 16, 2021, the Commonwealth issued a Request for Information (RFI) to gather broad feedback and ideas from the community on how to best utilize enhanced funding available through Section 9817 of the American Rescue Plan Act (ARPA). In response, 95 individuals and organizations submitted a total of 203 proposals across four defined Topic Areas:
      • Topic Area 1: Access to HCBS services and supports, 69 responses
      • Topic Area 2: Technology and infrastructure investments to strengthen HCBS, 41 responses
      • Topic Area 3: Initiatives that provide opportunities to promote HCBS and emphasize high-quality, person-centered care Promotion of HCBS, 26 responses
      • Topic Area 4: HBCS workforce development, including recruitment and retention strategies, 67 responses
  • Massachusetts Healthy Aging Collaborative – Working to make Massachusetts a national leader in vibrant and age-friendly communities. The Collaborative has identified a two-part model to promote healthy aging and the delivery of elder services in Massachusetts through evidence-based programs and other health promotion programs to support healthy communities. Programs and services should reflect the diversity and heterogeneity of older adults across the state.
  • Massachusetts FY 2022 State Budget Process – House of Representatives Budget Version – The House Committee on Ways and Means examines the Governor’s Proposal and releases its own recommendations for the annual budget for deliberation by the House of Representatives. Prior to release of the House Ways and Means Budget, Joint Ways and Means Committee budget hearings are held across the state.
  • Agency for Healthcare Quality and Research (AHQR) – National Healthcare Quality and Disparities Reports – The National Healthcare Quality and Disparities Report presents trends for measures related to access to care, affordable care, care coordination, effective treatment, healthy living, patient safety, and person-centered care. The report presents, in chart form, the latest available findings on quality of and access to healthcare, as well as disparities related to race and ethnicity, income, and other social determinants of health. Includes state level snapshots and various chartbooks. Report years available from 2003 through 2019.
  • The Network for Public Health Law – Addressing Chronic Conditions – The Network’s monthly reporter, Judicial Trends in Public Health (JTPH), highlights key court cases and relevant judicial trends in public health. The cases are organized under the JTPH topic, “Addressing Chronic Conditions.”
  • The Network for Public Health Law – The Network for Public Health Law provides leadership in the use of law to protect, promote and improve health and health equity. They provide non-partisan legal technical assistance and resources, collaborating with a broad set of partners across sectors to expand and enhance the use of practical legal and policy solutions.
  • Northeastern University Center for Health Policy and Law – The Center’s institutes and programs include the Public Health Advocacy Institute (PHAI), the Program on Human Rights and the Global Economy (PHRGE), the Center for Health Policy and Healthcare Research, the Institute for Health Equity and Social Justice Research, the Domestic Violence Institute (DVI), and Health in Justice Action Lab as well as thee health-related clinics, Domestic Violence Clinic, Poverty Law and Practice Clinic and the Public Health Legal Clinic.
  • Pioneer Network is the national leader of the culture change movement, helping care providers to transition away from a medical, institutional model of elder care to one that is life affirming, satisfying, humane and meaningful. Pioneer Network advocates for a culture of aging in which individual voices are heard and individual choices are respected.
  • U.S. Dept. of Health and Human Services – We Can Do This – A Health and Human Services campaign to increase vaccine confidence while reinforcing basic prevention measures
  • White House Official Site – This commitment to accessibility for all begins with this site and our efforts to ensure all functionality and all content is accessible to all Americans. Our ongoing accessibility effort works towards conforming to the Web Content Accessibility Guidelines (WCAG) version 2.1, level AA criteria. These guidelines not only help make web content accessible to users with sensory, cognitive and mobility disabilities, but ultimately to all users, regardless of ability. Ongoing accessibility efforts work toward making WhiteHouse.gov as accessible as possible. The White House welcomes comments on how to improve the site’s accessibility for users with disabilities.
  • World Health Organization (WHO) – Ageing – Comprehensive website with these components: Factsheets; Guidelines; Databases; WHO Resolutions; WHO Teams

Specific Disabilities

  • Asperger / Autism Network (AANE) – The Asperger/Autism Network (AANE) helps people with Asperger’s or similar autism spectrum and neurodiverse profiles build meaningful, connected lives. They provide individuals, families, and professionals with information, education, community, support, and advocacy — all in an inclusive atmosphere of validation and respect.

Technology

Veterans

Workforce

  • National Association of Health Care Assistants – The mission of the National Association of Health Care Assistants is to elevate the professional standing and performance of caregivers through recognition, advocacy, education, and empowerment while building a strong alliance with health care providers to maximize success and quality patient care.
  • PHI – PHI works to transform eldercare and disability services by fostering dignity, respect, and independence—for all who receive care, and all who provide it. As the nation’s leading authority on the direct care workforce, PHI promotes quality direct care jobs as the foundation for quality care.
  • PHI Workforce Data Center – From wages to employment statistics, across states and nationwide, find the latest data on the direct care workforce.