The Tuesday Digest

The Tuesday Digest is information compiled weekly by Dignity Alliance Massachusetts concerning long-term services, support, and care. We provide direct links to featured articles below. Each digest contains many more articles on key topics including Nursing Homes, Assisted Living, Home and Community, Housing, Behavioral Health, and Covid-19.

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Beginning with Issue 45, Quotes have been moved to the Quotes page. Funding Opportunities and Webinars also have their own pages.

2021

Issue #48- July 27, 2021

Featured

Download the Tuesday Digest 48: DAM Digest 048.docx

Issue #47- July 20, 2021

Featured

  • (Report) Administration on Community Living30 Years of Community Living for Individuals with Intellectual and/or Developmental Disabilities (1987-2017) – The Administration for Community Living has funded three longitudinal data projects of national significance for nearly 30 years. Those projects study where people with intellectual and/or developmental disabilities (ID/DD) live, if and where they work, and how public money is spent on supports. They report on the current status of those supports and on trends over time. This book reviews 30 years of data from state ID/DD agencies about community supports for people with ID/DD.
  • (Spotlight on DAM member) *Boston GlobeIn a time of crisis, Chris Hoeh’s generosity comes full circle – April 21, 2017
  • (Farren Care Center) Montague Reporter – The Farren’s Culture – July 8, 2021 – Letter to the Editor authored by Judi Fonsh, MSW, LICSW, Dignity Alliance Member and former Director of Social Work at Farren Care Center. See page 4.

Download the Tuesday Digest 47: DAM Digest 047.docx

Issue #46- July 13, 2021

Featured

  • (Report) Center for Medicare AdvocacyNursing Home Industry is Heavily Taxpayer-Subsidized – It is well-known that Government health care programs, Medicare, and Medicaid, are the primary payers for nursing home care. The two federal programs paid facilities tens of billions of dollars for providing care to residents and were the primary payer for nearly 80% of residents. Far less known is that, in addition to receiving these direct payments, the nursing home industry also benefits from the extensive subsidies, through income-related public benefit programs – Medicaid, food assistance, housing assistance, heating assistance, cash payments, tax credits, and more – that help support its underpaid staff. The Government subsidizes the nursing home industry by billions of dollars each year by providing needs-based public benefits and earned income tax credits to its many low-wage nursing home workers.

Download the Tuesday Digest 46: DAM Digest 046.docx

Issue #45- July 6, 2021

Download the Tuesday Digest 45: DAM Digest 045.docx

Issue #44- June 29, 2021

Quotes of the week

“We knew this was going to be bad, but I don’t think even those of us who work in this area thought it was going to be this bad. This was not individuals who were going to die anyway. We are talking about a really big number of excess deaths.” In response to the report from the Department of Health and Human Services Inspector General Report. Quote by David Grabowski, Harvard Medical School quoted in Nursing home deaths up 32% in 2020 amid pandemic, AP News, June 22, 2021, https://tinyurl.com/NHDeathsUp32In2020

Almost 1,000 more beneficiaries died per day in April 2020 than in April 2019. The number of beneficiaries in nursing homes who had or likely had COVID-19 grew to more than 4,700 per day in the Spring of 2020 and reached a total of nearly 419,000 by the end of June. Findings reported in COVID-19 Had a Devastating Impact on Medicare Beneficiaries in Nursing Homes During 2020, Report of the U. S. Department of Health and Human Services Office of Inspector General, June 22, 2021, https://tinyurl.com/DevastatingCompleteReport

The failure of many nursing home staff members to get vaccinated has emerged as one of the most serious gaps in the United States’ defenses against COVID. Fully one-quarter of the nation’s pandemic deaths have occurred in nursing homes; yet, nationwide, more than 40 percent of staff members are still unvaccinated, leaving the homes’ frail, elderly residents vulnerable. Nursing homes struggle to reduce a serious COVID risk: many employees resist vaccination, Boston Globe, June 24, 2021, https://tinyurl.com/NursingHomesStruggle

The COVID pandemic devastated nursing homes. People living in long-term care facilities represent less than 1 percent of the U.S. population but account for a third of its COVID deaths: more than 174,000 people as of early March. And it wasn’t just residents—nursing home workers had one of the deadliest jobs last year. America’s Long-Term Care System Is Broken, Scientific American, July 2021 issue, https://tinyurl.com/LTCSystemBroken

“This isn’t just a bad-actor problem. It’s the system that’s broken.” Quote by David Grabowski, Harvard Medical School quoted in America’s Long-Term Care System Is Broken, Scientific American, July 2021 issue, https://tinyurl.com/LTCSystemBroken

Physician: “Right now, his quality of life—he doesn’t have much of one.”
Spouse: “What do you mean? Because he’s paralyzed with a brain injury, he doesn’t have a quality of life?” Physician: “Correct.”
Recorded conversation between treating physician and wife of 46-year-old Michael Hickson who has a brain injury and is hospitalized with Covid-19, Ableism and Quality of Life During the Coronavirus Pandemic, Journal of Hospital Medicine, April 20, 2021, https://tinyurl.com/AbleismAndQualiytyOfLife

Featured

Download the Tuesday Digest 44: DAM Digest 044.docx

Issue #43 – June 22, 2021

Quotes of the week

“We really failed in a lot of ways, historically but also during this pandemic, to value older adults.” David Grabowski, professor at Harvard Medical School and an expert on long-term care quoted in COVID-19 Exposed the Faults in America’s Elder Care System. This Is Our Best Shot to Fix Them, Time, June 15, 2021, https://tinyurl.com/ElderCareAfterCovid

“It’s really a once-in-a-lifetime opportunity to update our public policy, our systems and our infrastructure for the next era.” Ai-jen Poo, co-director of Caring Across Generations, quoted in COVID-19 Exposed the Faults in America’s Elder Care System. This Is Our Best Shot to Fix Them, Time, June 15, 2021, https://tinyurl.com/ElderCareAfterCovid

“This is our moment to really provide transformative change to how we care for seniors and people with disabilities.  If we don’t get it right in this moment, I’m not sure we’re going to be able to do this for 10, 20 years.” Bob Casey, U. S. Senator, Pennsylvania, quoted in COVID-19 Exposed the Faults in America’s Elder Care System. This Is Our Best Shot to Fix Them, Time, June 15, 2021, https://tinyurl.com/ElderCareAfterCovid

“Perception is not something that happens to us, or in us. It is something we do.” Alva Noë, philosopher, in The Boy Who Learned to See—and What He Teaches Us About Vision, Washington Post, June 18, 2021, https://tinyurl.com/BoyWhoLearnedToSee

“They’re really making it so we don’t have a voice anymore.  And without that, we can’t get the things that we need to survive.” Susie Angel, quoted in G.O.P. Bills Rattle Disabled Voters: ‘We Don’t Have a Voice Anymore’, New York Times, June 14, 2021 https://tinyurl.com/RattleDisabledVoters

“Pandemic restrictions are falling away almost everywhere — except inside many of America’s nursing homes. Rules designed to protect the nation’s most vulnerable from COVID-19 are still being enforced even though 75% of nursing home residents are now vaccinated and infections and deaths have plummeted.” – ‘Protected them to death’: Elder-care COVID rules under fire, AP News  June 18, 2021,  https://tinyurl.com/ProtectedThemToDeath  

Featured

Download the Tuesday Digest 43: DAM Digest 043.docx

Issue #42 – June 15, 2021

Quotes of the week

If we do nothing else, we can at least keep up our improved handwashing habits this year. Some Pandemic Health Habits Deserve to Stay, Scientific American, June 2021 https://tinyurl.com/PandemicHealthHabits

“Judging by Jon [columnist George Will’s son who has Down syndrome],” Will wrote when his son turned 40 in 2013, “the world would be improved by more people with Down syndrome, who are quite nice, as humans go.” George Will, quoted in The Down syndrome bigotry of an Oxford biologist, Boston Globe, June 7, 2021 https://tinyurl.com/JacobyDownSyndromeBigotry

Featured

Download the Tuesday Digest 42: DAM Digest 042.docx

Issue #41 – June 8, 2021

Quotes of the week

… a healthier America will only be realized when we begin to look beyond the patients in front of us and prescribe solutions that lift people out of poverty, eliminate inequities and respect the dignity of all. Mona Hanna-Attisha, pediatrician and professor, Michigan State University College of Human Medicine, in “A Single Ohio Hospital Reveals All That’s Wrong with American Health Care”, a book review of The Hospital – Life, Death, and Dollars in a Small American Town by Brian Alexander, New York Times, April 8, 2021, (https://tinyurl.com/WrongAmericanHealthCare)

…as a political issue, elder care has had trouble gaining attention, much less traction. It rarely emerges as a hot topic on the campaign trail or in the halls of Congress — even though seniors vote in disproportionate numbers. The House dissolved its Permanent Select Committee on Aging more than a quarter-century ago, largely as a cost-cutting measure. Michelle Cottle, Editorial Board Member, Will Congress Abandon America’s Seniors?, New York Times, June 4, 2021, https://tinyurl.com/CongressAbandonSeniors

“If we paid staff based on how essential they are to the day-to-day operation, we’d have an entirely different pay scale.” Unidentified nursing home staff recruiter as quoted in Competition for Nursing Home Workers Hits an All-Time High, Skilled Nursing News, May 31, 2021, https://tinyurl.com/CompetitionAllTimeHigh

As we turn from COVID-19, it’s time to think seriously about how we address the needs of our aging population over the long term. That means pursuing policies and programs at the state and local level that address issues highlighted by the report — in the areas of emotional health, connectivity, and racial inequality. Editorial, Improving life for seniors, Salem News, June 7, 2021, https://tinyurl.com/ImprovingLifeForSeniors

“I need, like, five extra arms.” Chloe Mead, mother of 7-year-old, Henry, who has spinal muscular atrophy, a rare muscle-wasting disorder, requiring intensive, round-the-clock nursing at home, describing the impact of the severe shortage of in-home care providers.    To Keep Their Son Alive, They Sleep in Shifts. And Hope a Nurse Shows Up, New York Times, June 5, 2021, https://tinyurl.com/NYTKeepSonAliveSleepInShifts

Inspirational Stories

Featured

  • (Article) *New York TimesYou May Live a Lot Longer – June 7, 2021 – Commentary by David Brooks – The fraction of over-85s in the U.S. classified as disabled dropped by a third between 1982 and 2005, while the share who were institutionalized fell nearly in half.
  • (Article) *New York TimesTo Keep Their Son Alive, They Sleep in Shifts. And Hope a Nurse Shows Up. – June 5, 2021 – A nursing shortage — driven by the pandemic — has made life miserable for parents with profoundly disabled children. “What if I’m so exhausted that I make a mistake?”
  • (Video) It’s Not a Burden
    • Hoda and JennaHoda and Jenna spotlight ‘It’s Not a Burden’ – June 4, 2021 – June’s “Documentary of the Month” feature
    • It’s Not a Burden – Trailer
    • Official site – IT’S NOT A BURDEN: The Humor and Heartache of Raising Elderly Parents is a feature-length documentary that provides an intimate look, presented with humor and heart, at the relationships between aging parents and the adult children who care for them, examining the challenges they face and the solutions they discover along the way.
      • Emmy nominated director, Michelle Boyaner, “I was hanging out with friends one evening, and instead of chatting about shows we were binge watching, or dishing about who was dating who, we found ourselves comparing notes on adult diapers and dementia medications. We realized we’d crossed over into a strange new world we weren’t quite prepared for: we were all caring for our aging parents. They’d raised and loved us when we were most vulnerable, and now, thanks to the miracles of modern medicine – they were living a hell of a lot longer than previous generations, outlasting their bodies and retirement funds, and it was up to us, unwittingly… and in some cases unendingly – to return the favor.”
      • IT’S NOT A BURDEN is a documentary born from that evening. The touching, funny, and emotional film by Michelle Boyaner, chronicles her journey caring for her long-divorced parents (her mom battling dementia, her father, a hoarder). Other families’ supporting storylines– all races, genders, and backgrounds, are expertly woven throughout, showing the universal and inevitable issues, we as a nation face around the topic of aging. Leading with humor and heart, IT’S NOT A BURDEN takes on the relatable struggles of elder-care, with truth, humor, and compassion – exposing the multiple sides to this complex issue that affects so many while gently reminding us, we’re not alone.
  • (Holyoke Soldier’s Home) MaineBizMaine Veterans’ Homes $90 million Augusta development to begin – January 23, 2019 – 179,000-square-foot, four-building complex

Download the Tuesday Digest 41: DAM Digest 041.docx

Issue #40 – June 1, 2021

Quotes of the week

We hate steps and ramps.” – George Gallego, a restaurant owner who is paraplegic, explaining the motivation for developing a fully accessible Manhattan restaurant, Contento, along with his business partners who also have disabilities. What It Takes to Make a Restaurant Accessible to Everyone, Wall Street Journal, May 26, 2021 – (https://tinyurl.com/RestaurantAccessible)

Far too many of these buildings are very institutional, they look like hospitals, they don’t look like somebody’s home, they rarely have doctors in the building. We know nursing homes need a lot of work … A lot of the problems during the pandemic are going to persist.” – David Grabowski, Healthcare Policy Professor, Harvard Medical School. Nursing Homes Must Expect 3-Day Rule, Other CMS Requirements Will Return, Skilled Nursing News, May 25, 2021 – (https://tinyurl.com/3DayRuleReturn)

Guardianship is a blunt force instrument that is often applied when surgical approaches are better suited to cognitively impaired elders’ needs. In some abuse cases, for example, limited authority may be all that’s necessary to prevent an elder’s bank account from being pillaged, evict an abusive family member from a victim’s home, arrange for new housing or services, or to serve as a “responsible party,” without which nursing homes won’t accept residents. What we need is a continuum of decision-making options to address the continuum of needs.” – Lisa Nerenberg, Executive Director, California Elder Justice Coalition – In defense of guardians: responding to “I Care a Lot“, April 23, 2021, https://tinyurl.com/RespondingICareALot

Inspirational Stories

Shayna’s Story – Posted on the Wheeling Forward website – Shayna Brown is a 33-year-old woman who has Neuromyletis Optica, is a nursing home resident, and uses a motorized wheelchair. https://tinyurl.com/ShaynaBrown

Featured

  • (Report) Administration on Community LivingProfile of Older Americans 2020 – The Profile of Older Americans is an annual summary of critical statistics related to the older population in the United States. Relying primarily on data offered by the U.S. Census Bureau, the Profile illustrates the shifting demographics of Americans age 65 and older. It includes key topic areas such as income, living arrangements, education, health, and caregiving. The 2020 Profile includes special sections on COVID-19 and mental health. Excel data file and graphic display are available. Previous year profiles available 2005 through 2019.
  • (Report) Agency for Healthcare Quality and Research (AHQR)National Healthcare Quality and Disparities Reports – The National Healthcare Quality and Disparities Report presents trends for measures related to access to care, affordable care, care coordination, effective treatment, healthy living, patient safety, and person-centered care. The report presents, in chart form, the latest available findings on quality of and access to healthcare, as well as disparities related to race and ethnicity, income, and other social determinants of health. Includes state level snapshots and various chartbooks. Report years available from 2003 through 2019.
  • (Report) SAGELGBTQ AGING: The Case for Inclusive Long-Term Care Communities
  • (Article) Kaiser Health NewsCaring for an Aging Nation – May 28, 2021 – The number of Americans 65 and older is expected to nearly double in the next 40 years. Finding a way to provide and pay for the long-term health services they need won’t be easy.
  • (Website) Wheeling Forward – Mission: We help people with disabilities experience life to the fullest and enable them to see possibility where others see insurmountable obstacles.We work with individuals to provide the advocacy, mentorship, and support services they need to reach their goals, no matter how big or small. Programs include:
    • Nursing home transition program
    • Spinal mobility program
    • Adaptive sporting
    • Wine on Wheels
    • Axis Project, a multidisciplinary physical activity center
  • (Video) Posted on the Wheeling Forward websiteShayna’s Story – Shayna Brown is a 33-year-old woman who has Neuromyletis Optica, is a nursing home resident, and uses a motorized wheelchair.
  • (Video) CNBC NewsUsing the pandemic to rethink the nursing home model – November 18, 2020
  • (Video) TED TalkHow Societies Can Grow Old Better – March 2013 – Jared Diamond, UCLA Professor and Pulitzer Prize winner, looks at how many different societies treat their elders — some better, some worse — and suggests we all take advantage of experience.
  • (Holyoke Soldier’s Home) Maine Veterans’ HomesBuilding A Home for Heroes – Website detailing plans for the development of a nursing home for 135 Maine veterans utilizing the Veteran Administration’s “Small House” design model. The clinical needs residents will be addressed in state-of-the-art facilities. The model of care allows residents greater flexibility to be social, to enjoy time outdoors in our courtyards, and even go fishing in our on-site trout pond. Studies show that when individuals can no longer live at home, they do better in homelike settings: natural lighting, comfortable living rooms, private rooms. The design of the new Augusta Home follows the national movement of the Small House Model. It not only brings changes in the physical layout of the home, but it also modernizes the way that staff will fulfill the mission of “caring for those who served.”
  • (Holyoke Soldier’s Home) The Salem NewsBaker must testify on COVID-19 deaths at soldiers’ home – May 31, 2021 – Editorial

Download the Tuesday Digest 40: DAM Digest 040.docx

Issue #39 – May 25, 2021

Quotes of the week

…when you’ve been deprived of dignity you put a high, high premium on it. – President Joseph E. Biden in an interview with David Brooks, Has Biden Changed? He Tells Us, New York Times, May 21, 2021, https://tinyurl.com/HasBidenChanged

Nature will usually take pretty good care of you for about half a century if you don’t smoke.  After that, it’s up to you. – Jane E. Brody, A Writer’s Reflection on Turning 80, New York Times, May 18, 2021, https://tinyurl.com/JaneBrodyBirthdayMilestone

Among the abundant pleasures of turning 80, in addition to being well beyond the danger of dying young, is this: Having become skillful at ignoring the merely recurring things, you have more brain cells to devote to other things worth noticing and trying.
So, it is a momentous social achievement that those who turn 80 this month — they are only 18 months older than the president, who is only eight months older than Mick Jagger — must wait five more years to get the satisfaction of joining a decreasingly exclusive club: By percentage, this nation’s most rapidly growing age cohort consists of those 85 and older.
–  George F. Will, What my 80 years have taught me, Washington Post, May 7, 2021, https://tinyurl.com/80YearsHaveTaughtMe

Inspirational Stories

Featured

  • (Tribute) The National Consumer Voice for Long-Term Care – Tribute to Those Impacted by COVID-19 – The Consumer Voice honors and remembers those who have died in nursing homes during the Covid-19 pandemic. Watch a tribute video remembering those who have died in a long-term care facility during the COVID-19 pandemic and visit the tribute stories page to hear directly from residents and family members about their experiences. To read a few of these residents’ stories, click here: https://tinyurl.com/ConsumerVoiceTributes. If you would like to add a name to be honored or remembered on this page, please email their name, photo, and any information you would like included to info@theconsumervoice.org.
  • (Report) University of Massachusetts and The Community CatalystWhat Family Caregivers Need: Findings from Listening Sessions – May 17, 2021 – The family caregiver listening sessions included a range of diverse caregivers, from teen caregivers to grandparents providing care, and caregivers of varying racial and ethnic backgrounds. The listening sessions directly captured the emotional and financial stresses caregivers experience, and their priorities and concerns, including respite, caregiving education and training, and financial considerations, including direct pay for caregiving, workplace flexibility, and tax policy changes that support caregivers.
  • (Report) Center for Dignity in Healthcare The COVID-19 Pandemic and People with Disabilities: Primary Concerns, the AUCD Network Response, and Needs for the Future – March 2021 – Of the 12 million people who need long term services and supports, only 1.5 million live in congregate settings such as nursing homes and other types of institutions, with the remainder in home and community settings. Gaps in HCBS must continue to be addressed through enhanced federal funding, helping people who were relocated during COVID return home, and continuing to transition people from congregate setting to their communities as guaranteed under civil rights laws.
  • (Report) AARP Research ReportCaregiving in the U.S. – May 2020 – This study presents a portrait of unpaid family caregivers today based on data collected in 2019. The core areas examined:
    • The prevalence of caregivers in the United States
    • Demographic characteristics of caregivers and care recipients
    • The caregiver’s situation in terms of the nature of caregiving activities, the intensity and duration of care, the health conditions and living situation of the person to whom care is provided, and other unpaid and paid help provided
    • How caregiving affects caregiver stress, strain, and health
    • Financial impact on caregivers
    • Impacts on and supports provided to working caregivers
    • Information needs and resources
    • Technology and role of online support
  • (Website) U. S. Census BureauCommunity Resilience Estimates – April 28, 2021 – Community resilience is the capacity of individuals and households to absorb, endure, and recover from the health, social, and economic impacts of a disaster such as a hurricane or pandemic. When disasters occur, recovery depends on the community’s ability to withstand the effects of the event. To facilitate disaster preparedness, the Census Bureau has developed new small area estimates, identifying communities where resources and information may effectively mitigate the impact of disasters.
  • (Holyoke Soldiers’ Home) Massachusetts LegislatureConference Committee Report on the bond funding for the Holyoke Soldiers’ Home (H.3770) – May 15, 2021
  • (Holyoke Soldiers’ Home) CommonWealth Magazine Big demographic changes pose challenge to caring for veterans’ needs – May 5, 2021 – Authored by Coleman Nee, Disabled American Veterans

Download the Tuesday Digest 39: DAM Digest 039.docx

Featured in Issue #38 – May 18, 2021

  • (Quote of the Week) Boston GlobeI am so busy taking care of things, that sometimes I forget to look at him.  Doctor’s appointments.  Medications.  Physical therapists, occupational therapists. Who is scheduled this week?  What time?  Are you hungry?  Are you thirsty? I see him, of course.  I see his thin, white hair, his faded blue eyes, his false teeth that sometimes slip when he’s talking, the way his mother did, his hearing aid that shrieks its presence, but is useless as a bandaid behind his left ear.  An old man in an old chair, struggling to see, to hear, to keep up, to get up, and not give up. – by Beverly Beckham, Searching for the Heart of the Matter – May 13, 2021 (updated)
  • (Quote of the Week) STAT NewsImagine what would happen if clinicians called the people they treat “clients” or “activated consumers” or “partners.” With that mindset, they move away from implying what they will do to or for them, and instead describe what they will do with them as proactive partners. – by Summer Knight – Let’s banish the term ‘patient’ from the health care lexicon – May 13, 2021
  • (Quote of the Week) Politico We can’t just go back to business as usual after the tragedy we’ve seen in nursing homes. It’s not an acceptable solution. – Lori Smetanka, Executive Director of National Consumer Voice for Quality Long-Term Care, quoted in Will the Nursing Home of the Future be an Actual Home? – April 30, 2021
  • (Inspirational Story) The Boston GlobeSearching for the Heart of the Matter – May 13, 2021 (updated) – Column by Beverly Beckham
  • (Communities of Strength Challenge) Administration on Community LivingOlder Americans Month Challenge – The Administration on Community Living has issued a challenge in recognition of Older Americans Month. Use one word to describe your “community of strength”. Submit it via Twitter using the hashtags: #OAM21 Challenge; #CommunitiesOfStrength!; #OlderAmericansMonth.
  • (Day of Remembrance) Gray Panthers NYCA National Day of Remembrance: Honoring Nursing Home Lives Lost – Thursday, May 20, 2021, 5:00 to 6:00 p.m. – A national online event to honor more than 182,000 nursing home lives lost to COVID-19. This program will feature shared remembrances, spiritual reflections, musical tributes, and statements by elected officials.
  • (Website) Open Doors – OPEN DOORS is a network of artists, activists and advocates motivated by community building, gun violence prevention and disability rights. At the center of this network are the Reality Poets—a group of current and former residents of an NYC long-term care facility, who are bonded through a shared mission to spread a message of realness, resilience, and healing.
  • (ACL Online Data Resources) Administration on Community LivingProfile of State Older American Act Programs in Massachusetts – State Profile provide state level summaries and pre-populated tables of key data elements from Older Americans Act (OAA) Programs. State Profiles is designed to provide interactive comparisons with other states and the total US, as well as the locations of all State Units on Aging (SUA), Area Agencies on Aging (AAA), and Tribal Organizations. Annual data is available for years 2006 through 2018.
  • (ACL Online Data Resources) Administration on Community LivingAGing, Independence, and Disability (AGID) Program Data Portal – The AGing, Independence, and Disability (AGID) Program Data Portal is an on-line query system that provides access to ACL-related program performance results, surveys, and other data files. The four options or paths through AGID were designed to provide different levels of focus and aggregation of the data – from individual data elements within Data-at-a-Glance, to State-level summaries in State Profiles, to detailed, multi-year tables in Custom Tables, and finally, to full database access within Data Files. The purpose of the system is to:Provide a single, user friendly source for a variety of information on ACL supportive services and comprehensive systems of care for older adults and their caregivers, and people with disabilities of all ages
    • Allow users to quickly produce tables, maps, and other summary information from ACL-related data files and surveys, supplemented by Census-based population and demographic characteristics
    • Provide users full access to results from national surveys of recipients of Older Americans Act services and ACL Special Tabulations produced by the Census Bureau
  • (Article) STAT NewsLet’s banish the term ‘patient’ from the health care lexicon – May 13, 2021
  • (Article) Politico Will the Nursing Home of the Future be an Actual Home? – April 30, 2021 – The Covid-19 pandemic is accelerating a movement aimed at completely rethinking how we age — and where.
  • (Article) Deloitte InsightsAre consumers already living the future of health? – August 13, 2020 – Key trends in agency, virtual health, remote monitoring, and data-sharing
  • (Book) The Upper Hand: Leveraging Limitations to Turn Adversity into Advantage By Chris Ruden – Chris Ruden is an international keynote speaker, elite powerlifter, entrepreneur, disabled model, and advocate. Despite having been born with only two fingers on his left hand and a shorter left arm, he can deadlift over 675 pounds and is on track to becoming the World’s strongest adaptive athlete. His book, The Upper Hand, gives readers the simple tools they need to turn any perceived adversity into an advantage.
  • (Book) People Bodybuilder Chris Ruden Reveals How He Overcomes Disability and Diabetes to Gain The Upper Hand – May 10, 2021
  • (American Rescue Plan Act funding) Administration on Community LivingACL Policy Update: American Rescue Plan’s Additional Funding for Medicaid HCBS – May 13, 2021 – Acting Administrator & Assistant. Secretary for Aging, Alison Barkoff, addresses the American Rescue Plan’s additional funding
  • (Holyoke Soldiers’ Home) Massachusetts LegislatureConference Committee Report on the bond funding for the Holyoke Soldiers’ Home (H.3770) – May 15, 2021
  • (Holyoke Soldiers’ Home) CommonWealth MagazineBig demographic changes pose challenge to caring for veterans’ needs – May 5, 2021 – Authored by Coleman Nee, Disabled American Veterans
  • (Elder Abuse) National Center on Elder Abuse (NCEA)World Elder Abuse Awareness Day New Material – World Elder Abuse Awareness Day (WEAAD) 2021 is on June 15th. This site has added new material to educate about elder abuse prevention including translation to multiple languages.
  • (Elder Abuse) National Center on Elder Abuse (NCEA) Coming Back Strong After COVID-19: Federal Elder Justice Innovations and Resources – Wednesday, June 9, 2021, 12:00 p.m. – This webinar will highlight prominent elder justice issues and resources to strengthen the elder justice movement as we rebuild from the pandemic. Attendees will learn about tools and tips to enhance their elder abuse outreach and response efforts and strategies to spark community engagement. Presenters are from the Administration on Community Living, the National Clearinghouse on Elder Abuse, Elder Justice Initiative at the Department of Justice (DOJ), Securities and Exchange Commission (SEC), Social Security Administration (SSA), and the Consumer Financial Protection Bureau (CFPB).
  • (Elder Abuse) AARP Elder Abuse in the time of COVID-19: Where are we Now? – Friday, June 25, 2021, 10:00 to 11:45 a.m. – Featuring: Paul Greenwood, Former San Diego District Attorney and Expert on Elder Abuse
  • (Elder Abuse) Judicial Trends in Public Health: The Network for Public Health LawGarcia v. Welltower OpCo Group LLC et al. – May 14, 2021 – A California federal court found that the Public Readiness and Emergency Response (PREP) Act provided immunity in a suit alleging elder abuse and neglect, wrongful death, and intentional infliction of emotional distress.
  • (State Budget Process) Massachusetts FY 2022 State Budget Process – Tracks the progress of the FY 2022 budget. https://tinyurl.com/MAHouseFY22Budget

Download the Tuesday Digest 38: DAM Digest 038.docx

Featured in Issue #37 – May 11, 2021

  • (Quote of the Week) New York Times For years, federal health officials and some insurers have tried to encourage more stay-at-home care, and the pandemic has created a sense of urgency. “It’s really changed the paradigm on how older adults want to live,” said Dr. Sarita Mohanty, the chief executive of the SCAN Foundation, a nonprofit group focused on issues facing older adults. – May 6, 2021: https://tinyurl.com/CovidForcesFamilies
  • (Inspirational Story) – Today Show (NBC)Man walks Appalachian Trail after Parkinson’s diagnosis – April 11, 2021 – One piece of advice Parkinson’s disease patients often hear from their doctors is that they need to keep their bodies moving. Meet a man who is taking the advice to the extreme. “I feel like as long as I stay on top of the disease that I’m going to win. I’m not going to let Parkinson’s interrupt my journey,” Dan Schoenthal says.
  • (Communities of Strength Challenge) Administration on Community LivingOlder Americans Month Challenge – The Administration on Community Living has issued a challenge in recognition of Older Americans Month. Use one word to describe your “community of strength”. Submit it via Twitter using the hashtags: #OAM21 Challenge; #CommunitiesOfStrength!; #OlderAmericansMonth.
  • A National Day of Remembrance: Honoring Nursing Home Lives Lost) – Gray Panthers NYC A National Day of Remembrance: Honoring Nursing Home Lives LostThursday, May 20, 2021, 5:00 to 6:00 p.m. – A national online event to honor more than 182,000 nursing home lives lost to COVID-19. This program will feature shared remembrances, spiritual reflections, musical tributes, and statements by elected officials.
  • (American Rescue Plan Act) Center for State Policy Analysis at Tufts University’s Tisch CollegeReport Analyzes How Massachusetts Can Maximize Benefit of American Rescue Plan – Describes key principles for spending billions in federal aid
  • (Podcasts) STAT News (Podcast)A physician and a philosopher on long Covid’s mind-body mystery – May 5, 2021
  • (ACL Online Data Resources) Administration on Community LivingProfile of State Older American Act Programs in Massachusetts – State Profile provide state level summaries and pre-populated tables of key data elements from Older Americans Act (OAA) Programs. State Profiles is designed to provide interactive comparisons with other states and the total US, as well as the locations of all State Units on Aging (SUA), Area Agencies on Aging (AAA), and Tribal Organizations. Annual data is available for years 2006 through 2018.
  • (ACL Online Data Resources) Administration on Community LivingAGing, Independence, and Disability (AGID) Program Data Portal – The AGing, Independence, and Disability (AGID) Program Data Portal is an on-line query system that provides access to ACL-related program performance results, surveys, and other data files. The four options or paths through AGID were designed to provide different levels of focus and aggregation of the data – from individual data elements within Data-at-a-Glance, to State-level summaries in State Profiles, to detailed, multi-year tables in Custom Tables, and finally, to full database access within Data Files. The purpose of the system is to:
    • Provide a single, user friendly source for a variety of information on ACL supportive services and comprehensive systems of care for older adults and their caregivers, and people with disabilities of all ages
    • Allow users to quickly produce tables, maps, and other summary information from ACL-related data files and surveys, supplemented by Census-based population and demographic characteristics
    • Provide users full access to results from national surveys of recipients of Older Americans Act services and ACL Special Tabulations produced by the Census Bureau
  • (Article) *New York TimesCovid Forces Families to Rethink Nursing Home Care – May 8, 2021 – Even with vaccines, many older people and their relatives are weighing how to manage at-home care for those who can no longer live independently.
  • (Article) ABC NewsLong-term care industry facing changes as pandemic pushes more families toward home care – May 6, 2021 – Consumers are shifting away from nursing homes, according to a new study.
  • (Article) AP NewsAP-NORC poll: Government should help Americans age at home – May 3, 2021 – Many Americans agree that government should help people fulfill a widely held aspiration to age in their own homes, not institutional settings, a new poll finds.
  • (Community Champions video series) Centers for Medicare and Medicaid Services – To support the long-term care community, CMS is producing a social media videos highlighting staff, referred to as Community Champions. This edition features staff who moved from being initially uncertain about receiving the COVID-19 vaccine to accepting the vaccine– and encouraging their peers to do the same. – https://tinyurl.com/LTCCommunityChampions
  • (Massachusetts Alzheimer’s Disease and Related Dementias) Massachusetts Alzheimer’s Advisory CouncilMassachusetts State Plan on Alzheimer’s Disease and Related Dementias – April 2021 – The Massachusetts Alzheimer’s Advisory Council, established under Chapter 220 of the Acts of 2018, released the Massachusetts State Plan on Alzheimer’s Disease and Related Dementias. Alzheimer’s disease and other related dementias are a large and growing public health crisis. Today, there are approximately 130,000 people in Massachusetts living with dementia who are supported by over340,000 family caregivers. The Massachusetts Advisory Council is charged with advising the Executive Office of Health and Human Services and the Massachusetts state legislature on policies around Alzheimer’s disease and related dementias. The Council is currently chaired by the Secretary of the Executive Office of Elder Affairs and is composed of a diverse panel of caregivers, clinicians, dementia advocates, health care providers, legislators, public health professionals, and researchers. The Advisory Council identified and discussed issues faced by Massachusetts residents living with dementia and their caregivers, as well as listened to the voices of individuals impacted by dementia and shared their own expertise, knowledge, and ideas. The Massachusetts state plan includes recommendations and implementation plans approved by the Advisory Council for each of the following focus areas: (1) Caregiver Support and Public Awareness,(2)Diagnosis and Services Navigation, (3) Equitable Access and Care, (4) Physical Infrastructure, (5) Public Health Infrastructure, (6)Quality of Care, and (7)Research.
  • (Massachusetts Alzheimer’s Disease and Related Dementias) Massachusetts Alzheimer’s Advisory Council – Annual Report of the Alzheimer’s Advisory Council – April 2021
  • (Holyoke Soldiers’ Home) Commonwealth MagazineBig demographic changes pose challenge to caring for veterans’ needs – May 5, 2021 – We need to be proactive in planning to preserve infrastructure for those who serve. Article authored by Coleman Nee, Disabled American Veterans and former Secretary of Massachusetts Department of Veterans’ Services
  • (Elder Abuse) National Center on Elder Abuse (NCEA) Coming Back Strong After COVID-19: Federal Elder Justice Innovations and Resources – Wednesday, June 9, 2021, 12:00 p.m. – This webinar will highlight prominent elder justice issues and resources to strengthen the elder justice movement as we rebuild from the pandemic. Attendees will learn about tools and tips to enhance their elder abuse outreach and response efforts and strategies to spark community engagement. Presenters are from the Administration on Community Living, the National Clearinghouse on Elder Abuse, Elder Justice Initiative at the Department of Justice (DOJ), Securities and Exchange Commission (SEC), Social Security Administration (SSA), and the Consumer Financial Protection Bureau (CFPB).
  • (State Budget Process) Massachusetts FY 2022 State Budget Process – Tracks the progress of the FY 2022 budget. https://tinyurl.com/MAHouseFY22Budget

(Emergency Broadband Benefit Program) Federal Communications Commission – FCC Launches Emergency Broadband Benefit Program on May 12 – May 12, 2021 – The Emergency Broadband Benefit is a Federal Communication Commission (FCC) program to help families and households struggling to afford internet service during the COVID-19 pandemic. This new benefit will connect eligible households to jobs, critical healthcare services, virtual classrooms, and more. The FCC has announced that eligible households can apply for the program starting May 12, 2021 in three ways:

  1. Contact your preferred participating broadband provider directly to learn about their application process.
  2. Go to GetEmergencyBroadband.org to apply online and to find participating providers near you.
  3. Call 833-511-0311 for a mail-in application and return it along with proof of eligibility to: Emergency Broadband Support Center, P.O. Box 7081, London, KY 40742.

Individuals who use videophones and are fluent in American Sign Language (ASL) may call the FCC’s ASL Consumer Support Line at (844) 432-2275 (videophone). On April 13, the FCC and ACL hosted a webinar that provided an overview of the benefit, eligibility criteria, how to apply, and the FCC’s partner toolkit materials. Webinar materials are now available:

Download the Tuesday Digest 37: DAM Digest 037.docx

Featured in Issue #36 – May 4, 2021

  • (Updated Nursing Home Guidance) CMS: Center for Clinical Standards and Quality/Survey & Certification GroupNursing Home Visitation Guidance – Updated April 27, 2021
  • (Updated Nursing Home Guidance) Center for Disease Control and PreventionUpdated Healthcare Infection Prevention and Control Recommendations in Response to COVID-19 Vaccination – April 27, 2021
  • (Updated Nursing Home Guidance) CMS: Center for Clinical Standards and Quality/Survey & Certification Group – Visitation at Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IIDs) and Psychiatric Residential Treatment Facilities – February 10, 2021
  • (Life During the Pandemic) Health AffairsIn Patients We Trust: Why Clinicians Need To Believe And Respect Patients – “Why do I have to prove that there’s something wrong with me in order for my pain to be treated. – April 29, 2021
  • (Broadcast Report) Innovation Hub (NPR)The Invisible Future of American Jobs – April 30, 2021 – Over the last several decades, manufacturing jobs in the U.S. have withered. Meanwhile, health care has become the fastest growing job sector in the country, and it’s been on top for years. According to Gabriel Winant, a historian at the University of Chicago, and author of “The Next Shift: The Fall of Industry and the Rise of Health Care in Rust Belt America,” not only are those two opposing trends related, but there are also some serious consequences to the connection. Three Takeaways:
    • The link between a growth in health care jobs and the shrinkage in manufacturing comes down to a specific way that people in the Rust Belt are aging. The sweeping plant closures in places like Pittsburgh in the 1980s created an entire population of displaced workers. Health conditions associated with the stress of unemployment often caused serious health issues, including a higher mortality rate among those who had been laid off. That all culminated in a huge need for health care workers; so as factories shut down, doctors, nurses, nursing home workers, janitors, and more got to work.
    • Health care now dominates the job market, but Winant calls the industry “invisible.” When politicians speak about job creation and economic revitalization, they are commonly referring to manufacturing, rather than the real economic leader in jobs. Despite their huge share in the economy, many health care and hospital workers, from RNs to janitorial staff, have seen wages, benefits, and working conditions stagnate.
    • Hospitals have a huge amount of power in the cities that rely on them, which has given them the ability to grow and merge, thereby becoming massive institutions. These hospitals also run on both public and private money, which Winant says has led to a fragmentation of responsibility – not a good thing when you’re looking to do a massive vaccine rollout.
  • (Report) Milbank Memorial FundPrimary Care in the COVID-19 Pandemic – April 29, 2021
  • Massachusetts FY 2022 State Budget ProcessHouse of Representatives Budget Version – The House Committee on Ways and Means examines the Governor’s Proposal and releases its own recommendations for the annual budget for deliberation by the House of Representatives. Prior to release of the House Ways and Means Budget, Joint Ways and Means Committee budget hearings are held across the state.

Download the Tuesday Digest 36: DAM Digest 036.docx

Featured in Issue #35 – April 27, 2021

  • (Holyoke Soldiers’ Home) WWLP.com – Senate Boosts Holyoke Bond Bill to $600M, Removes Labor Agreement – April 23, 2021
  • (Holyoke Soldiers’ Home) Massachusetts State SenateSenate Amendment (SB 2439) regarding Holyoke Soldiers’ Home Bond Authorization
  • (Holyoke Soldiers’ Home) Massachusetts House of RepresentativesAn Act financing the reconstruction of the Soldiers’ Home in Holyoke
  • (Holyoke Soldiers’ Home) AP NewsMassachusetts House OKs bill for new Holyoke Soldiers’ Home – April 15, 2021
  • (Holyoke Soldiers’ Home) *State House News Service via Banker & TradesmanBuilding Trades Rattled Over Labor Agreement in Holyoke Home Bill – April 15, 2021
  • (Holyoke Soldiers’ Home) *The Boston GlobeIn pushing old-style approach for a new soldiers’ home, Mass. abandons key blueprint for care – April 14, 2021 – Letter to the Editor submitted Dignity Alliance Massachusetts
  • (Holyoke Soldiers’ Home) Health AffairsThe Big Idea Behind A New Model of Small Nursing Homes – March 2021 – Long-term care facilities have been devastated by COVID-19, with one exception: a group of small facilities called Green Houses.
  • (Holyoke Soldiers’ Home) Payette AssociatesSoldiers’ Home in Holyoke Rapid Planning Report – Needs Assessment and Implementation Roadmap – November 11, 2020 – In September 2020, the Commonwealth’s Division of Capital Asset Management and Maintenance (DCAMM) retained the services of Payette Associates to evaluate the future of 70-year-old Soldiers’ Home in Holyoke campus. The goal was to recommend what programs and services the Home should provide, compare them to the current and future needs of the Veterans in the Commonwealth, establish the potential size of those programs based on current and future needs, and to estimate their potential cost so that the Commonwealth could begin the next steps required to update the facility.
  • (Holyoke Soldiers’ Home) U. S. Department of Veterans AffairsSmall House (SH) Model Design Guide – March 2019 (revised) – This document is used as a guide to the standards for the planning and design of VA facilities based on the Small House (SH) Model as well as for State Veterans Homes (SVH) and is supplementary to current technical manuals, building codes, and other VA criteria in planning healthcare facilities. This Small House (SH) Model Design Guide is also a tool to assist VA medical center staff and clinicians in better understanding the choices that project designers ask them to make during the design process. This Design Guide also serves the VA’s design consultants in understanding the planning and design direction preferred by VA.
  • (Holyoke Soldiers’ Home) Massachusetts Institute of TechnologyThe Current and Future Long-Term Care Needs of Massachusetts’ Veterans – October 31, 2013 – In June 2013, the Commonwealth of Massachusetts commissioned a group of researchers from the Massachusetts Institute of Technology to examine the present and future long-term care of the State’s veteran population. This document represents the results of this commission.
  • NPR – Life During the Pandemic – Suzie Mclean had been a nurse in a busy ambulatory surgery center for decades when the pandemic hit in 2020. Her mother, Lillian House, then 97, was living in an independent retirement complex and beginning to struggle with routine tasks due to declining health. So, Mclean added a small addition onto her Wilmington, N.C., home so that they could quarantine as a family. Nothing, she says, could have prepared her for the “exhaustion or the joy” of wearing so many hats: instant roommate, Netflix navigator, hair stylist, nail technician, spa direct, confidant, cook, dishwasher, dietitian, hearing aid repairman and all-around comfort keeper. Mclean treasures the time they spend reading together at the end of each day: House with reading glasses that magnify 10x and her own 2.75’s. “I look over and see the most beautiful, and resilient human I know,” she writes. “My Mom. Lillian, now 98. What a gift.”
  • Health Affairs – In Celebration of National Poetry Month
  • (Federal Proposal) Axios Democratic senators call on Biden to expand Medicare in American Families Plan – April 25, 2021
  • (Federal Proposal) *Modern HealthcareHouse Lawmakers Want Medicare To Fund Mental Health Peer Support Services – April 23, 2021
  • (Report) Kaiser Family FoundationCOVID-19 Long-Term Care Deaths and Cases Are at An All-Time Low, Though A Rise in LTC Cases In A Few States May Be Cause for Concern – April 22, 2021
  • (Report) Centers for Medicare and Medicaid Centers: Accountable Health CommunitiesBuilding Strong a Community Partnerships to Address Social Needs – A Case study in effective advisory board collaboration from the Accountable Health Communities Model
  • U. S. Census BureauCommunity Resilience Estimates – Community resilience is the capacity of individuals and households to absorb, endure, and recover from the health, social, and economic impacts of a disaster such as a hurricane or pandemic. Individual and household characteristics from the 2018 American Community Survey (ACS) were modeled, in combination with publicly available data from the 2018 National Health Interview Survey (NHIS), to provide tract and county level estimates. Maps display by county percentages and number of persons with 3 or more risk factors.
  • U. S. Census BureauCoronavirus (COVID-19) Pandemic Data Hub
  • (Website) We Can Do This – A Health and Human Services campaign to increase vaccine confidence while reinforcing basic prevention measures.
  • (Website) Department of Health and Human ServicesUser Guide for Older Adults Toolkit – April 13, 2021 – This material is intended for all organizations that communicate directly with the older adult community.
  • Massachusetts FY 2022 State Budget Process – House of Representatives Budget Version – The House Committee on Ways and Means examines the Governor’s Proposal and releases its own recommendations for the annual budget for deliberation by the House of Representatives. Prior to release of the House Ways and Means Budget, Joint Ways and Means Committee budget hearings are held across the state.

Download the Tuesday Digest 35: DAM Digest 035.docx

Featured in Issue #34 – April 20, 2021

  • (Voluntary nursing home closures) Agawam Healthcare
  • (Voluntary nursing home closures) Wareham Healthcare
  • (Voluntary nursing home closures) Massachusetts Department of Public HealthInformation about nursing home closures
  • (Holyoke Soldiers’ Home) AP NewsMassachusetts House OKs bill for new Holyoke Soldiers’ Home – April 15, 2021
  • (Holyoke Soldiers’ Home) *State House News Service via Banker & TradesmanBuilding Trades Rattled Over Labor Agreement in Holyoke Home Bill – April 15, 2021
  • (Holyoke Soldiers’ Home) *The Boston GlobeIn pushing old-style approach for a new soldiers’ home, Mass. abandons key blueprint for care – April 14, 2021 – Letter to the Editor submitted Dignity Alliance Massachusetts
  • (Holyoke Soldiers’ Home) Payette AssociatesSoldiers’ Home in Holyoke, Rapid Planning Report, Needs Assessment and Implementation Roadmap – November 11, 2020 – In September 2020, the Commonwealth’s Division of Capital Asset Management and Maintenance (DCAMM) retained the services of Payette Associates to evaluate the future of 70-year old Soldiers’ Home in Holyoke campus. The goal was to recommend what programs and services the Home should provide, compare them to the current and future needs of the Veterans in the Commonwealth, establish the potential size of those programs based on current and future needs, and to estimate their potential cost so that the Commonwealth could begin the next steps required to update the facility.
  • (Holyoke Soldiers’ Home) U. S. Department of Veterans AffairsSmall House (SH) Model Design Guide – March 2019 (revised) – This document is used as a guide to the standards for the planning and design of VA facilities based on the Small House (SH) Model as well as for State Veterans Homes (SVH) and is supplementary to current technical manuals, building codes, and other VA criteria in planning healthcare facilities. This Small House (SH) Model Design Guide is also a tool to assist VA medical center staff and clinicians in better understanding the choices that project designers ask them to make during the design process. This Design Guide also serves the VA’s design consultants in understanding the planning and design direction preferred by VA.
  • (Holyoke Soldiers’ Home) Massachusetts Institute of TechnologyThe Current and Future Long-Term Care Needs of Massachusetts’ Veterans – October 31, 2013 – In June 2013, the Commonwealth of Massachusetts commissioned a group of researchers from the Massachusetts Institute of Technology to examine the present and future long-term care of the State’s veteran population. This document represents the results of this commission.
  • (website) National Association of Councils on Developmental Disabilities (NACDD) – GetOutTheVaccine.org – A website that helps people with disabilities make informed decisions about getting vaccinated
  • (website) U. S. Department of Health and Human Services – The COVID-19 Community Corps – The HHS COVID-19 public education campaign is a national initiative to increase public confidence in and uptake of COVID-19 vaccines while reinforcing basic prevention measures such as mask wearing and social distancing. Through a nationwide network of trusted messengers and consistent, fact-based public health messaging, the campaign helps the public make informed decisions about their health and COVID-19, including steps to protect themselves and their communities. The effort is driven by communication science and provides tailored information for at-risk groups. Strategy and Goals: This effort focuses on Americans who want to protect their health, but may have questions about the COVID-19 vaccines. We aim to:
    • Explain how Americans can protect themselves from COVID-19.
    • Strengthen public confidence in the vaccines so those who are hesitant will be more willing to consider vaccination.
    • Increase vaccine uptake by informing Americans about how and where to get vaccinated
  • (Biden Proposal) The Gerontology Institute Blog – UMass BostonReinvesting in home and community-based services – April 16, 2021 – How the Biden Administration’s $1.9 trillion relief bill will impact Medicaid in Massachusetts
  • (Biden Proposal) *The New York TimesRosie Could Be a Riveter Only Because of a Care Economy. Where Is Ours? – April 16, 2021 – The men and women who went to work and war during World War II were backed by a care economy. We need one too.
  • (Biden Proposal) *The New York TimesBiden Takes on Sagging Safety Net with Plan to Fix Long-Term Care – April 15, 2021 – The proposal to spend $400 billion over eight years faces political challenges and a funding system not designed for the burden it has come to bear.
  • (Biden Proposal) PoliticoDems weigh narrower health ambitions for infrastructure package – April 15, 2021 – The “social infrastructure” piece of the $2 trillion-plus bill would be progressive lawmakers’ best chance to broaden the social safety net before the mid-term election.
  • (Biden Proposal) The Hill Why an infrastructure for aging is good for America – April 13, 2021
  • (Biden Proposal) MarketWatchOpinion: Caregiving is a vital part of the nation’s infrastructure like bridges and roads – April 12, 2021 (updated April 13, 2021)
  • (Biden Proposal) *New York TimesAt Last, Aid for Senior Nutrition That Offers More Than Crumbs – April 10, 2021 – Meal programs for older adults have long been underfunded. The new economic recovery plan will help.
  • (Biden Proposal) *Washington Post $5 billion in stimulus funds tabbed for reducing homelessness; Biden administration aims to get 130,000 people off the street – April 8, 2021 – Housing and Urban Development Secretary Marcia L. Fudge said in an announcement that the money, allocated under the $1.9 trillion stimulus package, could be used for rental assistance, affordable housing development and sheltering people in hotels.
  • (Report) AARP Public Policy InstituteSpotlight: Older Americans Act – February 2019 – The Older Americans Act (OAA) provides critical services—such as home-delivered and congregate meals, family caregiver support, in-home assistance, preventive health services, transportation, job training, protection from abuse, and other supportive services—that help about 11 million older adults live as independently as possible. In fiscal year 2019, OAA federal funding was $2.06 billion. Funding for the program has failed to keep up with inflation and increased demand from a rapidly aging population.
  • (Book Review) Wall Street JournalJory Fleming Sees the Neurotypical World from an Outsider’s Perspective – April 17, 2021 – An author and Rhodes Scholar challenges misguided assumptions about people with autism. Author of How to Be Human: An Autistic Man’s Guide to Life (Simon & Shuster, 2021).(Book Review) Wall Street Journal – Jory Fleming Sees the Neurotypical World from an Outsider’s Perspective – April 17, 2021 – An author and Rhodes Scholar challenges misguided assumptions about people with autism. Author of How to Be Human: An Autistic Man’s Guide to Life (Simon & Shuster, 2021).
  • (MA Budget Process) Massachusetts FY 2022 State Budget ProcessHouse of Representatives Budget Version – The House Committee on Ways and Means examines the Governor’s Proposal and releases its own recommendations for the annual budget for deliberation by the House of Representatives. Prior to release of the House Ways and Means Budget, Joint Ways and Means Committee budget hearings are held across the state.

Download the Tuesday Digest 34: DAM Digest 034.docx

Featured in Issue #33 – April 13, 2021

  • (Voluntary nursing home closures) Halcyon House, Methuen
    • Closure date: July 16, 2021
    • Public hearing: Wednesday, April 14, 2021, 6:00 p.m., Dial-in number: 888-390-5007; passcode: 7794318
    • Notice of Intent to Close and Draft Closure Plan: tinyurl.com/HalcyonClosure
  • (Voluntary nursing home closures) Agawam Healthcare
  • (Voluntary nursing home closures) Wareham Healthcare
  • (Voluntary nursing home closures) Massachusetts Department of Public HealthInformation about nursing home closures
  • (Recording) AARP Home and Community-Based Services Convening Session – April 7, 2021 – Access the recording of the session: Passcode: zi@eg?1b
  • (Broadcast Report) Last Week Tonight with John OliverLong Term Care – April 12, 2021 – John Oliver explains the industry behind nursing homes and assisted living facilities, and why long-term care needs fixing. Penny Shaw, nursing home resident and advocate and member of Dignity Alliance Massachusetts, has a cameo appearance.
  • (Broadcast Report) Sunday Today (NBC)Man walks Appalachian Trail after Parkinson’s diagnosis – April 11, 2021 – One piece of advice Parkinson’s disease patients often hear from their doctors is that they need to keep their bodies moving. On this World Parkinson’s Day, meet a man who is taking the advice to the extreme. “I feel like as long as I stay on top of the disease that I’m going to win. I’m not going to let Parkinson’s interrupt my journey,” Dan Schoenthal says.
  • (Report) The National Consumer Voice for Quality Long-Term CareSuccessful Transitions: Reducing the Negative Impact of Nursing Home Closures – 2016
  • (Report) Center for Medicare and Medicaid ServicesMinimum Data Set (MDS) 3.0 Frequency Report – The MDS 3.0 Frequency Report summarizes information for active residents currently in nursing homes. The source of these counts is the resident’s MDS assessment record. The MDS assessment information for each active nursing home resident is consolidated to create a profile of the most recent standard information for the resident.

Download the Tuesday Digest 33: DAM Digest 033.docx

Featured in Issue #32 – April 6, 2021

Download the Tuesday Digest 32: DAM Digest 032.docx

Featured in Issue #31 – March 30, 2021

  • (Article) Ariadne LabsBeyond Goal Driven Care: Autonomy, Meaning, and Belonging in Nursing Home Care – November 17, 2020 – Blog post by Dr. Rachel Broudy, Dignity Alliance MA member
  • (Article) Healthenly.orgThe Dignity of Risk: Turning Elder Care into Elder Life – September 24, 2020 – Podcast by Dr. Rachel Broudy, Dignity Alliance MA member
  • (Video of Seminar) Leonard Davis Institute of Health Economics, University of PennsylvaniaIntegrating Social Services into Health Care – One hour seminar March, 2021- Comprehensively addressing the social determinants of health is an ideal as well as a complex logistical puzzle for all parties involved in providing health care. The details of that quest were the subject of a virtual seminar at University of Pennsylvania’s Leonard Davis Institute of Health Economics (LDI).
  • (Report) PHI Caring for the Future: The Power and Potential of America’s Direct Care Workforce – January 12, 2021 – The report provides a comprehensive, current-day analysis of the direct care workforce.
  • (Article) Next AvenueThe Nursing Home Vulnerabilities That Led to Disaster – March 26, 2021 – Experts say these five main factors caused the colossal failures during the pandemic:
    • Staffing
    • Funding
    • Corporate structure
    • Lack of oversight and enforcement
    • Aging Buildings
  • (Article) Next AvenueHow’d We Get Here? The History of Nursing Homes – March 5, 2021
  • (Article) Leonard Davis Institute of Health Economics, University of PennsylvaniaPolicy Options for Financing Long-Term Care in the U.S. – April 15, 2020 – Unlike many other developed nations, the U.S. has no system that protects its residents against the high costs of long-term care, which many people will need as they age. Medicaid coverage kicks in only after families have exhausted their resources. Until then, families bear the financial and caregiving burden of LTC themselves. In the absence of a national system, several states have considered or passed programs that offer some support for LTC. Many peer nations have more comprehensive systems to spread the risk for LTC costs across their population, through social insurance or other mechanisms. This Issue Brief reviews international models of financing LTC, as well as recent state efforts, to help U.S. policymakers design a program that can meet the LTC challenges of an aging population.
  • (Website) New England ADA Center’s ADACOVID-19 Webpage – People with disabilities have the right to participate in the programs, services and activities offered by municipalities, non-profit organizations, state agencies or businesses. This right of participation remains even during a pandemic, and this principle is even more critical. This website provides information about how the ADA relates to programs and services provided during the COVID-19 pandemic.
  • (Website) Institute on Disability, University of New HampshireVirtual Release of the 2021 Annual Disability Statistics Compendium – Virtual release of the proceedings of the four-day Annual Disability Statistics Compendium occurring on February 9-12, 2021. During this compendium, experts presented three web-based tools (Compendium, Supplement, and State Report) that make finding and using disability statistics easier for individuals working on legislative and other matters relating to persons with disabilities.
  • (Focus on Longevity) Innovation Hub – WGBHYour State’s Politics Might Be the Death of You – March 16, 2021 – Twenty-three-minute recorded interview – Policymakers have a thumb on the scale when it comes to how long we live. Jennifer Karas Montez, a sociologist and demographer at Syracuse University, has spent her career studying the social causes of death and disease in the United States – how differing state policies have contributed to a 7-year gap between the state with the highest (Hawaii) and the lowest (West Virginia) life expectancy in the U.S. Though COVID-19 has shined a light on how different state approaches to health affect day-to-day life, even in non-pandemic times, longevity and health are deeply impacted by what’s going on at the state level. From how generous paid leave is where you live, to how easy marijuana is to access, the patchwork of policies across the U.S affect health outcomes.
  • (Focus on Longevity) CNBCHere are the states with the longest and shortest life expectancies, according to the CDC – March 11, 2021
  • (Focus on Longevity) The Milbank QuarterlyUS State Policies, Politics, and Life Expectancy – September 2020 – Policy Points:
    • Changes in US state policies since the 1970s, particularly after 2010, have played an important role in the stagnation and recent decline in US life expectancy.
    • Some US state policies appear to be key levers for improving life expectancy, such as policies on tobacco, labor, immigration, civil rights, and the environment.
    • US life expectancy is estimated to be 2.8 years longer among women and 2.1 years longer among men if all US states enjoyed the health advantages of states with more liberal policies, which would put US life expectancy on par with other high-income countries.
  • (Focus on Longevity) InsiderLife expectancy in the US keeps going down, and a new study says America’s worsening inequality could be to blame – November 30, 2019
  • (Focus on Longevity) National Institutes of Health – Healthy habits can lengthen life – May 8, 2018
    • Researchers found that people who maintained five healthy lifestyle factors lived more than a decade longer than those who did not maintain any of the five.
    • The results suggest that Americans can increase the length of their lives and lower their disease risk by adopting a healthier lifestyle.

Download the Tuesday Digest 31: DAM Digest 031.docx

Featured in Issue #30 – March 23, 2021

Download the Tuesday Digest 30: DAM Digest 030.docx

Featured in Issue #29 – March 16, 2021

  • (Report) The Gerontology Institute BlogNew Report Ranks Elder Economic Insecurity in 100 Largest U.S. Metro Areas – March 12, 2021
  • (Public Policy Proposal) Executive Office of Health and Human Services – Roadmap for Behavioral Health Reform
  • (Website) The Consumer VoiceA Year of Lockdown and Loss – Through two special video presentations, Consumer Voice honors and remembers those who have died this past year and hears directly from residents and family members about their experiences during the lockdown.
  • (Article) New York Times via Yahoo NewsMaggots, Rape and Yet Five Stars: How U.S. Ratings of Nursing Homes Mislead the Public – March 13, 2021 – Nursing homes have manipulated the influential star system in ways that have masked deep problems — and left them unprepared for Covid-19.
  • (Article) PoliticoNursing homes need fixing. Here’s where to start. – March 11, 2021 – The most dangerous job in America is nursing home caregiver, but a few key policy changes could make senior homes safer for everyone in the post-Covid era. Author is David Grabowski, Professor of Health Care Policy, Department of Health Care Policy, Harvard Medical School.
  • (Article) Center for Medicare and Medicaid ServicesNursing Home Visitation – March 10, 2021 – COVID-19 Revised Recommendations
  • (Recorded Webinar) Massachusetts Association for Mental HealthWorking with Older Adult Trauma Survivors – Undated – Joan Cook, Ph.D., a nationally-recognized expert in geriatric traumatic stress at the Yale School of Medicine’s Department of Psychiatry, discusses the impact of trauma as a risk factor for older adult well-being and offers strategies for more effectively supporting older adults with a history of trauma.
  • (Recorded Webinar) Massachusetts Association for Mental HealthCaregiving Conversations: Reflecting on Race, Older Adults, and Implications for Behavioral Health – September 30, 2020 – 46 minutes – This webinar conversation explores answers to the question: What would it look like if we acknowledged and addressed the impact of racism and disparities in providing services to older adults? Presenters include Sandra Best Bailly, MSW (Simmons University School of Social Work), Lynda Phillips, LICSW, MA (BIO 1 Healthcare Consulting), and Emmanuelle Renelique (Awakening Excellence Adult Day Health Center).
  • (Recorded Webinar) Massachusetts Association for Mental HealthCOVID: Supporting Frontline Staff and Caregivers – August 27, 2020 – 46 minutes – MA Health & Human Services Secretary Marylou Sudders kicks off MAMH’s Well Being in the Time of COVID series by acknowledging the important contributions of frontline staff and caregivers supporting people most at risk during the pandemic.
  • (Recorded Webinar) Massachusetts Association for Mental HealthSubstance Use, Co-Occurring Conditions, and Older Adults – August 27, 2020 – 104 minutes – This webinar training with Karen Fortuna, Ph.D. introduces MAMH’s REACH with Older Adults approach to supporting older adults who may have problems with substance use.

Download the Tuesday Digest 29: DAM Digest 029.docx

Featured in Issue #28 – March 9, 2021

Download the Tuesday Digest 28: DAM Digest 028.docx

Featured in Issue #27 – March 2, 2021

  • (Report) Manatt COVID-19 State Resource Guide: Leveraging Federal and State Authorities to Ensure Access to LTSS – February 25, 2021
  • (Report) LeadingAge Long Term Services and Support CenterA Blueprint to Guide Research and Actions for Better Dementia Care – February 25, 2021 – A new report from the National Academies of Sciences, Engineering, and Medicine presents a framework for future research and action around dementia care.
  • (Report) Center for Consumer Engagement in Health InnovationTracking Progress on Person-Centered Care for Older Adults: How Are We Doing? – January 2021 – Person-centered care is essential for health systems and providers to emphasize a holistic approach oriented around individuals’ goals and preferences. Using Health and Retirement Study data, we measure if older adults experience receiving person-centered care, showing differences by race, income, and other factors, and how receiving person-centered care affects satisfaction and use. One-third of older adults report that their preferences were only rarely or sometimes taken into account with large variations by race. When preferences are ignored, older adults are more likely to forgo medical care and report lower satisfaction. New efforts are needed to strengthen and advance person-centered care, particularly for people of color and those with low incomes.
  • (Report) CMS: Center for Clinical Standards and Quality/Quality, Safety & Oversight GroupGuidance: Visitation at Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IIDs) and Psychiatric Residential Treatment Facilities
  • (Discussion Group) Long Term Care Discussion Group – The Long Term Care Discussion Group is a voluntary, independent group that meets for the purpose of educating the policy community on all facets of long term care. The group convenes monthly presentations exploring long term care policy, research, and advocacy issues. Membership is free and open to all. Participants span the entire spectrum of the long term care policy community, including federal agency and congressional staff, researchers, and representatives of a wide variety of stakeholder organizations. The new co-chair of the LTC Discussion Group is Pamela Nadash, Associate Professor of Gerontology at University of Massachusetts Boston, in the McCormack School of Policy & Global Studies and Fellow of the LeadingAge LTSS Center at UMass Boston. For more information or to be included on the distribution list, email: LTCDiscussionGroup@gmail.com.
  • (Website) Administration on Community LivingCommit to Connect
    • Resources for the aging and disability networks
    • Combating social isolation and loneliness in all communities
  • (Website) Issued by The White HouseNational Strategy for the Covid-19 Response and Pandemic Preparedness – January 21, 2021
  • (Article) Administration on Community Living – ACL Advocacy: Visitation in Congregate Settings – February 24, 2021

Information about the movies The Father and I Care A Lot

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Featured in Issue #26 – February 23, 2021

  • (Report) Center for Medicare AdvocacyGeography Is Not Destiny: Protecting Nursing Home Residents from the Next Pandemic
  • (Report) Center for Social and Demographic Research on Aging PublicationsAging Strong for All: Examining Aging Equity in the City of Boston – December 2020 – The experience of being and becoming older differs substantially based on one’s race, ethnicity, and gender. In the City of Boston, it has never been more critical to strategically pursue greater equity in the aging experience of residents. According to data from the US Census Bureau, the number of Boston residents aged 60 or older increased by more than a third just since 2010 and persons of color now make up half of Boston’s older adults. As well, stakeholders share a growing recognition of the powerful ways in which inequity, racism and discrimination shape health outcomes and the aging experience, amplifying the need to scrutinize and remediate disparities in aging. The purpose of this report is to examine these intersecting trends and to document disparities experienced by older residents across three major dimensions of healthy aging: economic security, health, and social engagement. The report tells a story of inequities across the life course that together challenge the ability of many people to thrive in later life and contribute to disparities across populations.
  • Article) *New York Times‘We Are Going to Keep You Safe, Even if It Kills Your Spirit’ – February 19, 2021 – For the millions of Americans living with dementia, every day during this pandemic can bring a fresh horror
  • Interviews with Dr. Asif Merchant, a geriatrician and associate clinical professor at Tufts University School of Medicine. He serves on the COVID-19 Vaccine Advisory Group for the governor of Massachusetts.

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Featured in Issue #25 – February 16, 2021

  • (Report) Kaiser Family FoundationVaccine Monitor: Reasons Vary Why People Want to “Wait and See” Before Getting a COVID-19 Vaccine – February 12, 2021
  • (Website) Administration on Community LivingCoronavirus Disease 2019 (COVID-19) Website – Website with timely Covid 19 information regarding older adults and persons with disabilities and extensive links.
  • (Website) Johns Hopkins Disability Health Research Center COVID-19 Vaccine Prioritization Dashboard – This dashboard was created as a partnership between the Johns Hopkins Disability Health Research Center and the Center for Dignity in Healthcare for People with Disabilities as a starting point for understanding how each state is prioritizing the disability community in COVID-19 vaccine distribution and intends to help people with disabilities determine when they qualify for a COVID-19 vaccine in their state.
  • (Fact Sheet) Autistic Self-Advocacy NetworkCOVID-19 Vaccine Fact Sheet – A new COVID-19 Vaccination Fact Sheet from the Autistic Self Advocacy Network (ASAN) is available in a plain language format and in an Easy Read format with pictures, large text, and has more white space.

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Featured in Issue #24 – February 9, 2021

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Featured in Issue #23 – February 2, 2021

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Featured in Issue #22 – January 26, 2021

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Featured in Issue #21 – January 19, 2021

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Featured in Issue #20 – January 12, 2021

  • (Report) Massachusetts Commission on Falls PreventionPhase 3 Report: Improving Integration of Falls Risk Assessment and Referral in Health Care Practices – November 2020 – The statutory body known as the MA Commission on Falls Prevention recently completed a new report of recommendations to address older adult falls in Massachusetts that pays special attention to the important role of primary care providers. This report is now available in addition to the two previous reports, Phase 2 Report: Recommendations of the Massachusetts Commission on Falls Prevention (September 2015) and Phase 1 Report: The Current Landscape (September 2013).
  • (Report) Joint Center for Housing Studies of Harvard UniversityThe State of the Nation’s Housing 2020 – undated
  • (Website) World Health Organization (WH0) Ageing – Comprehensive website with these components: Factsheets; Guidelines; Databases; WHO Resolutions; WHO Teams
  • (Website) Pro PublicaNursing Home Inspect – How Safe Are Nursing Homes Near Me? This Tool Will Help You Find Out. – Nursing Home Inspect searches through thousands of nursing home inspection reports to find problems and trends. The latest update includes data on infection control violations, and notations for facilities that have had a coronavirus case.
  • Kaiser Family FoundationJoe Biden’s New Health Care Agenda (and CMS’s Big Role in It) – January 11, 2021 – Drew Altman, President of the Kaiser Family Foundation, discusses President-elect Biden’s potential health care agenda and suggests that the Centers for Medicare and Medicaid Services could have an expanded role and that it may be time to rename it and elevate it to a cabinet agency.
  • Center for Disease Control and PreventionMorbidity and Mortality Weekly Report – January 8, 2021 – Rates of COVID-19 Among Residents and Staff Members in Nursing Homes — United States, May 25–November 22, 2020. Summary:
    • What is already known about this topic? – In the United States, COVID-19 among older adults living in nursing homes is associated with higher rates of severe illness and death.
    • What is added by this report? Rates of COVID-19 among nursing home residents and staff members increased during June and July 2020, and again in November. Trends in reported COVID-19 cases among nursing home residents and staff members were similar to trends in incidence of COVID-19 in surrounding communities.
    • What are the implications for public health practice? Increases in community rates might be associated with increases in nursing home COVID-19 incidence, and nursing home mitigation strategies need to include a comprehensive plan to monitor local SARS-CoV-2 transmission and minimize high-risk exposures within facilities.
  • LifePathA Card Shower for Long-Term Care Residents – January 8, 2021 – Initiative to address isolation and loneliness of nursing home residents in Franklin County, MA undertaken by Trevor Boeding, Nursing Home Ombudsman at LifePath in Greenfield, MA, a member of Dignity Alliance Massachusetts.
  • *Washington Post – Covid-19 poses special risks to people like my brother-in-law. They need vaccines now. – January 5, 2021 – Persons with intellectual and developmental disabilities and those who care for them are at high risk during the Covid-19 pandemic. They should be given correspondingly high priority for Covid-19 vaccines.
  • NPR – All Things Considered – December Proved to Be Deadliest Month for Residents in Long-Term Care – January 4, 2021
  • Skilled Nursing NewsNursing Homes Must Change or Face Extinction After a Disastrous 2020 – January 3, 2021

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Featured in Issue #19 – January 5, 2021

  • *The New YorkerThe Plague Year – January 4, 2021 – A detailed 40-page examination of the origin and impact of Covid-19.
  • Federal Trade Commission – Consumer InformationStimulus payments for people, not nursing homes – January 4, 2021- The $600 is meant for the PERSON, not the place they might live. Important consumer information.
  • *New York Times‘Because of You Guys, I’m Stuck in My Room’ – January 1, 2021 – Residents and caregivers at senior living facilities write about life during the pandemic — and trying to stay safe while facing the challenges of long-term isolation.
  • *Wall Street JournalCovid-19 Stalked Nursing Homes Around the World – December 31, 2020 -Government after government left frail residents vulnerable to pandemic; data review shows they accounted for over a third of fatalities in some countries
  • *New York TimesThis Is Why Nursing Homes Failed So Badly – December 31, 2020 – The first coronavirus outbreak in the United States happened in a nursing home in February. Since then, it’s only gotten worse.

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2020

Featured in Issue #18 – December 29, 2020

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Featured in Issue #17 – December 22, 2020

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Featured in Issue #16 – December 15, 2020

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Featured in Issue #15 – December 8, 2020

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Featured in Issue #14 – December 1, 2020

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Featured in Issue #13 – November 24, 2020

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Featured in Issue #12 – November 17, 2020

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Featured in Issue #11 – November 10, 2020

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Featured in Issue #10 – November 3, 2020

  • The 19th Pandemic restrictions may impact the nursing home vote – November 2, 2020 – National nursing home advocate and Dignity Alliance Massachusetts member, Penny Shaw, was interviewed for this article.
  • Tufts Health Plan FoundationHow Innovative Community Responses to COVID-19 Support Healthy Aging – October 28, 2020 – The research focused on six communities particularly affected by the pandemic. Four cities—Brockton, Chelsea, Lawrence and Lynn—are diverse and experienced some of the highest COVID-19 infection rates in the state; and Cape Cod and the Hilltowns regions are rural and geographically isolated communities with significant older populations.
  • (Website) Kaiser Health NewsLook Up Your Hospital: Is It Being Penalized by Medicare? – November 2, 2020 – You can search by hospital name or location, look at all hospitals in a particular state and sort penalties by year. Under programs set up by the Affordable Care Act, the federal government cuts payments to hospitals that have high rates of readmissions and those with the highest numbers of infections and patient injuries. For the readmission penalties, Medicare cuts as much as 3 percent for each patient, although the average is generally much lower. The patient safety penalties cost hospitals 1 percent of Medicare payments over the federal fiscal year, which runs from October through September.

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Featured in Issue #9 – October 27, 2020

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Featured in Issue #8 – October 13, 2020

Videos / Films:

  • Netflix Crip Camp – A Disability Revolution – 2020 – feature film – Groundbreaking documentary, premiering at Sundance, depicts summer camp operating from the 1950’s through the 1970’s for teens with disabilities which helps build a movement, forging a new path toward greater equality. Executive producers: President Barack Obama and Michelle Obama.
  • NetflixDeaf U – 2020 – docuseries – In this reality series, a tight-knit group of Deaf and hard of hearing students share their stories and explore life at Gallaudet University.

Download the Tuesday Digest 8: DAM Digest 008.docx

Featured in Issue #7 – October 6, 2020

  • (Website) AARP Long-Term Services & Supports State Scorecard – The fourth edition of the LTSS State Scorecard, released in fall 2020, takes a multi-dimensional approach to measure state-level performance of LTSS systems that assist older adults, people with physical disabilities, and family caregivers. Unlike many other rankings that focus on a particular aspect of LTSS system performance, the Scorecard compares state LTSS systems across multiple dimensions, reflecting the importance and interconnectedness each has on the overall LTSS system. Open the Massachusetts scorecard pdf.
  • (Website) Institute for Healthcare Improvement (IHI)COVID-19 Rapid Response Network for Nursing Homes – The Institute for Healthcare Improvement, with support from The John A. Hartford Foundation, offers the COVID-19 Rapid Response Network for Nursing Homes to support nursing home leadership, staff, residents, families, and communities impacted by the COVID-19 pandemic. Included is access to webinars, online and print resources, and links to relevant sites. The site requires free registration.
  • *The Boston GlobeLast Words – September 27-29, 2020 – A three-part Globe Spotlight Team series exposes the inequities that follow people in Massachusetts to their very last breaths. It is a deep examination into the uncomfortable topic of death and confronts the state’s failure to protect its most vulnerable in the early days of a historic pandemic.
  • *The Boston GlobeWe need to transform the way we pay for and provide long-term care – October 2, 2020 (updated) – Letter to the Editor by Dick Moore, Dignity Alliance Massachusetts member
  • Next Avenue10 Things You Can Do to Support Aging with Dignity and Independence – January 2, 2020
  • Next Avenue10 Things Every Family Should Know About Aging with Dignity and Independence – November 9, 2020

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Featured in Issue #6 – September 29, 2020

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Featured in Issue #5 – September 22, 2020

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Featured in Issue #4 – September 15, 2020

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Featured in Issue #3 – September 8, 2020

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Featured in Issue #2 – September 1, 2020

  1. *The AtlanticAgeism is Making the Pandemic Worse – published March 28, 2020 – Article by Louise Aronson, geriatrician and professor of medicine, University of California, San Francisco and author of Elderhood: Redefining Aging, Transforming Medicine, and Reimaging Life
  2. Kaiser Family FoundationKey Questions About the Impact of Coronavirus on Long-Term Care Facilities Over Time – published September 1, 2020 – Just released analysis of COVID-19 cases and deaths in long-term care facilities
  3. Kaiser Family FoundationOverlooked and Undercounted: The Growing Impact of COVID-19 on Assisted Living Facilities – published on September 1, 2020 – Just released analysis of impact of COVID-19 within assisted living facilities
  4. Kaiser Family FoundationState Actions to Sustain Medicaid Long-Term Services and Supports During COVID-19 – published on August 26, 2020
  5. Manatt HealthRecommendations to Strengthen the Resilience of New Jersey’s Nursing Homes in the Wake of COVID-19 – published on June 2, 2020 – Detailed PowerPoint presentation – See especially pages 13, 22-50, 53-54

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Featured in Issue #1 – August 25, 2020

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