The Tuesday Digest

The Tuesday Digest is information compiled weekly by Dignity Alliance Massachusetts concerning long-term services, support, and care. We provide direct links to featured articles below. Each digest contains many more articles on key topics including Nursing Homes, Assisted Living, Home and Community, Housing, Behavioral Health, and Covid-19.

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2021

Featured in Issue #27 – March 2, 2021

  • (Report) Manatt COVID-19 State Resource Guide: Leveraging Federal and State Authorities to Ensure Access to LTSS – February 25, 2021
  • (Report) LeadingAge Long Term Services and Support CenterA Blueprint to Guide Research and Actions for Better Dementia Care – February 25, 2021 – A new report from the National Academies of Sciences, Engineering, and Medicine presents a framework for future research and action around dementia care.
  • (Report) Center for Consumer Engagement in Health InnovationTracking Progress on Person-Centered Care for Older Adults: How Are We Doing? – January 2021 – Person-centered care is essential for health systems and providers to emphasize a holistic approach oriented around individuals’ goals and preferences. Using Health and Retirement Study data, we measure if older adults experience receiving person-centered care, showing differences by race, income, and other factors, and how receiving person-centered care affects satisfaction and use. One-third of older adults report that their preferences were only rarely or sometimes taken into account with large variations by race. When preferences are ignored, older adults are more likely to forgo medical care and report lower satisfaction. New efforts are needed to strengthen and advance person-centered care, particularly for people of color and those with low incomes.
  • (Report) CMS: Center for Clinical Standards and Quality/Quality, Safety & Oversight GroupGuidance: Visitation at Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IIDs) and Psychiatric Residential Treatment Facilities
  • (Discussion Group) Long Term Care Discussion Group – The Long Term Care Discussion Group is a voluntary, independent group that meets for the purpose of educating the policy community on all facets of long term care. The group convenes monthly presentations exploring long term care policy, research, and advocacy issues. Membership is free and open to all. Participants span the entire spectrum of the long term care policy community, including federal agency and congressional staff, researchers, and representatives of a wide variety of stakeholder organizations. The new co-chair of the LTC Discussion Group is Pamela Nadash, Associate Professor of Gerontology at University of Massachusetts Boston, in the McCormack School of Policy & Global Studies and Fellow of the LeadingAge LTSS Center at UMass Boston. For more information or to be included on the distribution list, email: LTCDiscussionGroup@gmail.com.
  • (Website) Administration on Community LivingCommit to Connect
    • Resources for the aging and disability networks
    • Combating social isolation and loneliness in all communities
  • (Website) Issued by The White HouseNational Strategy for the Covid-19 Response and Pandemic Preparedness – January 21, 2021
  • (Article) Administration on Community Living – ACL Advocacy: Visitation in Congregate Settings – February 24, 2021

Information about the movies The Father and I Care A Lot

Download the Tuesday Digest 27: DAM Digest 027.docx

Featured in Issue #26 – February 23, 2021

  • (Report) Center for Medicare AdvocacyGeography Is Not Destiny: Protecting Nursing Home Residents from the Next Pandemic
  • (Report) Center for Social and Demographic Research on Aging PublicationsAging Strong for All: Examining Aging Equity in the City of Boston – December 2020 – The experience of being and becoming older differs substantially based on one’s race, ethnicity, and gender. In the City of Boston, it has never been more critical to strategically pursue greater equity in the aging experience of residents. According to data from the US Census Bureau, the number of Boston residents aged 60 or older increased by more than a third just since 2010 and persons of color now make up half of Boston’s older adults. As well, stakeholders share a growing recognition of the powerful ways in which inequity, racism and discrimination shape health outcomes and the aging experience, amplifying the need to scrutinize and remediate disparities in aging. The purpose of this report is to examine these intersecting trends and to document disparities experienced by older residents across three major dimensions of healthy aging: economic security, health, and social engagement. The report tells a story of inequities across the life course that together challenge the ability of many people to thrive in later life and contribute to disparities across populations.
  • Article) *New York Times‘We Are Going to Keep You Safe, Even if It Kills Your Spirit’ – February 19, 2021 – For the millions of Americans living with dementia, every day during this pandemic can bring a fresh horror
  • Interviews with Dr. Asif Merchant, a geriatrician and associate clinical professor at Tufts University School of Medicine. He serves on the COVID-19 Vaccine Advisory Group for the governor of Massachusetts.

Download the Tuesday Digest 26: DAM Digest 026.docx

Featured in Issue #25 – February 16, 2021

  • (Report) Kaiser Family FoundationVaccine Monitor: Reasons Vary Why People Want to “Wait and See” Before Getting a COVID-19 Vaccine – February 12, 2021
  • (Website) Administration on Community LivingCoronavirus Disease 2019 (COVID-19) Website – Website with timely Covid 19 information regarding older adults and persons with disabilities and extensive links.
  • (Website) Johns Hopkins Disability Health Research Center COVID-19 Vaccine Prioritization Dashboard – This dashboard was created as a partnership between the Johns Hopkins Disability Health Research Center and the Center for Dignity in Healthcare for People with Disabilities as a starting point for understanding how each state is prioritizing the disability community in COVID-19 vaccine distribution and intends to help people with disabilities determine when they qualify for a COVID-19 vaccine in their state.
  • (Fact Sheet) Autistic Self-Advocacy NetworkCOVID-19 Vaccine Fact Sheet – A new COVID-19 Vaccination Fact Sheet from the Autistic Self Advocacy Network (ASAN) is available in a plain language format and in an Easy Read format with pictures, large text, and has more white space.

Download the Tuesday Digest 25: DAM Digest 025.docx

Featured in Issue #24 – February 9, 2021

Download the Tuesday Digest 24: DAM Digest 024.docx

Featured in Issue #23 – February 2, 2021

Download the Tuesday Digest 23: DAM Digest 023.docx

Featured in Issue #22 – January 26, 2021

Download the Tuesday Digest 22: DAM Digest 022.docx

Featured in Issue #21 – January 19, 2021

Download the Tuesday Digest 21: DAM Digest 021.docx

Featured in Issue #20 – January 12, 2021

  • (Report) Massachusetts Commission on Falls PreventionPhase 3 Report: Improving Integration of Falls Risk Assessment and Referral in Health Care Practices – November 2020 – The statutory body known as the MA Commission on Falls Prevention recently completed a new report of recommendations to address older adult falls in Massachusetts that pays special attention to the important role of primary care providers. This report is now available in addition to the two previous reports, Phase 2 Report: Recommendations of the Massachusetts Commission on Falls Prevention (September 2015) and Phase 1 Report: The Current Landscape (September 2013).
  • (Report) Joint Center for Housing Studies of Harvard UniversityThe State of the Nation’s Housing 2020 – undated
  • (Website) World Health Organization (WH0) Ageing – Comprehensive website with these components: Factsheets; Guidelines; Databases; WHO Resolutions; WHO Teams
  • (Website) Pro PublicaNursing Home Inspect – How Safe Are Nursing Homes Near Me? This Tool Will Help You Find Out. – Nursing Home Inspect searches through thousands of nursing home inspection reports to find problems and trends. The latest update includes data on infection control violations, and notations for facilities that have had a coronavirus case.
  • Kaiser Family FoundationJoe Biden’s New Health Care Agenda (and CMS’s Big Role in It) – January 11, 2021 – Drew Altman, President of the Kaiser Family Foundation, discusses President-elect Biden’s potential health care agenda and suggests that the Centers for Medicare and Medicaid Services could have an expanded role and that it may be time to rename it and elevate it to a cabinet agency.
  • Center for Disease Control and PreventionMorbidity and Mortality Weekly Report – January 8, 2021 – Rates of COVID-19 Among Residents and Staff Members in Nursing Homes — United States, May 25–November 22, 2020. Summary:
    • What is already known about this topic? – In the United States, COVID-19 among older adults living in nursing homes is associated with higher rates of severe illness and death.
    • What is added by this report? Rates of COVID-19 among nursing home residents and staff members increased during June and July 2020, and again in November. Trends in reported COVID-19 cases among nursing home residents and staff members were similar to trends in incidence of COVID-19 in surrounding communities.
    • What are the implications for public health practice? Increases in community rates might be associated with increases in nursing home COVID-19 incidence, and nursing home mitigation strategies need to include a comprehensive plan to monitor local SARS-CoV-2 transmission and minimize high-risk exposures within facilities.
  • LifePathA Card Shower for Long-Term Care Residents – January 8, 2021 – Initiative to address isolation and loneliness of nursing home residents in Franklin County, MA undertaken by Trevor Boeding, Nursing Home Ombudsman at LifePath in Greenfield, MA, a member of Dignity Alliance Massachusetts.
  • *Washington Post – Covid-19 poses special risks to people like my brother-in-law. They need vaccines now. – January 5, 2021 – Persons with intellectual and developmental disabilities and those who care for them are at high risk during the Covid-19 pandemic. They should be given correspondingly high priority for Covid-19 vaccines.
  • NPR – All Things Considered – December Proved to Be Deadliest Month for Residents in Long-Term Care – January 4, 2021
  • Skilled Nursing NewsNursing Homes Must Change or Face Extinction After a Disastrous 2020 – January 3, 2021

Download the Tuesday Digest 20: DAM Digest 020.docx

Featured in Issue #19 – January 5, 2021

  • *The New YorkerThe Plague Year – January 4, 2021 – A detailed 40-page examination of the origin and impact of Covid-19.
  • Federal Trade Commission – Consumer InformationStimulus payments for people, not nursing homes – January 4, 2021- The $600 is meant for the PERSON, not the place they might live. Important consumer information.
  • *New York Times‘Because of You Guys, I’m Stuck in My Room’ – January 1, 2021 – Residents and caregivers at senior living facilities write about life during the pandemic — and trying to stay safe while facing the challenges of long-term isolation.
  • *Wall Street JournalCovid-19 Stalked Nursing Homes Around the World – December 31, 2020 -Government after government left frail residents vulnerable to pandemic; data review shows they accounted for over a third of fatalities in some countries
  • *New York TimesThis Is Why Nursing Homes Failed So Badly – December 31, 2020 – The first coronavirus outbreak in the United States happened in a nursing home in February. Since then, it’s only gotten worse.

Download the Tuesday Digest 19: DAM Digest 019.docx

2020

Featured in Issue #18 – December 29, 2020

Download the Tuesday Digest 18: DAM Digest 018.docx

Featured in Issue #17 – December 22, 2020

Download the Tuesday Digest 17: DAM Digest 017.docx

Featured in Issue #16 – December 15, 2020

Download the Tuesday Digest 16: DAM Digest 016.docx

Featured in Issue #15 – December 8, 2020

Download the Tuesday Digest 15: DAM Digest 015.docx

Featured in Issue #14 – December 1, 2020

Download the Tuesday Digest 14: DAM Digest 014.docx

Featured in Issue #13 – November 24, 2020

Download the Tuesday Digest 13: DAM Digest 013.docx

Featured in Issue #12 – November 17, 2020

Download the Tuesday Digest 12: DAM Digest 012.docx

Featured in Issue #11 – November 10, 2020

Download the Tuesday Digest 11: DAM Digest 011.docx

Featured in Issue #10 – November 3, 2020

  • The 19th Pandemic restrictions may impact the nursing home vote – November 2, 2020 – National nursing home advocate and Dignity Alliance Massachusetts member, Penny Shaw, was interviewed for this article.
  • Tufts Health Plan FoundationHow Innovative Community Responses to COVID-19 Support Healthy Aging – October 28, 2020 – The research focused on six communities particularly affected by the pandemic. Four cities—Brockton, Chelsea, Lawrence and Lynn—are diverse and experienced some of the highest COVID-19 infection rates in the state; and Cape Cod and the Hilltowns regions are rural and geographically isolated communities with significant older populations.
  • (Website) Kaiser Health NewsLook Up Your Hospital: Is It Being Penalized by Medicare? – November 2, 2020 – You can search by hospital name or location, look at all hospitals in a particular state and sort penalties by year. Under programs set up by the Affordable Care Act, the federal government cuts payments to hospitals that have high rates of readmissions and those with the highest numbers of infections and patient injuries. For the readmission penalties, Medicare cuts as much as 3 percent for each patient, although the average is generally much lower. The patient safety penalties cost hospitals 1 percent of Medicare payments over the federal fiscal year, which runs from October through September.

Download the Tuesday Digest 10: DAM Digest 010.docx

Featured in Issue #9 – October 27, 2020

Download the Tuesday Digest 9: DAM Digest 009.docx

Featured in Issue #8 – October 13, 2020

Videos / Films:

  • Netflix Crip Camp – A Disability Revolution – 2020 – feature film – Groundbreaking documentary, premiering at Sundance, depicts summer camp operating from the 1950’s through the 1970’s for teens with disabilities which helps build a movement, forging a new path toward greater equality. Executive producers: President Barack Obama and Michelle Obama.
  • NetflixDeaf U – 2020 – docuseries – In this reality series, a tight-knit group of Deaf and hard of hearing students share their stories and explore life at Gallaudet University.

Download the Tuesday Digest 8: DAM Digest 008.docx

Featured in Issue #7 – October 6, 2020

  • (Website) AARP Long-Term Services & Supports State Scorecard – The fourth edition of the LTSS State Scorecard, released in fall 2020, takes a multi-dimensional approach to measure state-level performance of LTSS systems that assist older adults, people with physical disabilities, and family caregivers. Unlike many other rankings that focus on a particular aspect of LTSS system performance, the Scorecard compares state LTSS systems across multiple dimensions, reflecting the importance and interconnectedness each has on the overall LTSS system. Open the Massachusetts scorecard pdf.
  • (Website) Institute for Healthcare Improvement (IHI)COVID-19 Rapid Response Network for Nursing Homes – The Institute for Healthcare Improvement, with support from The John A. Hartford Foundation, offers the COVID-19 Rapid Response Network for Nursing Homes to support nursing home leadership, staff, residents, families, and communities impacted by the COVID-19 pandemic. Included is access to webinars, online and print resources, and links to relevant sites. The site requires free registration.
  • *The Boston GlobeLast Words – September 27-29, 2020 – A three-part Globe Spotlight Team series exposes the inequities that follow people in Massachusetts to their very last breaths. It is a deep examination into the uncomfortable topic of death and confronts the state’s failure to protect its most vulnerable in the early days of a historic pandemic.
  • *The Boston GlobeWe need to transform the way we pay for and provide long-term care – October 2, 2020 (updated) – Letter to the Editor by Dick Moore, Dignity Alliance Massachusetts member
  • Next Avenue10 Things You Can Do to Support Aging with Dignity and Independence – January 2, 2020
  • Next Avenue10 Things Every Family Should Know About Aging with Dignity and Independence – November 9, 2020

Download the Tuesday Digest 7: DAM Digest 007.docx

Featured in Issue #6 – September 29, 2020

Download the Tuesday Digest 6: DAM Digest 006.docx

Featured in Issue #5 – September 22, 2020

Download the Tuesday Digest 5: DAM Digest 005.docx

Featured in Issue #4 – September 15, 2020

Download the Tuesday Digest 4: DAM Digest 004.docx

Featured in Issue #3 – September 8, 2020

Download the Tuesday Digest 3: DAM Digest 003.docx

Featured in Issue #2 – September 1, 2020

  1. *The AtlanticAgeism is Making the Pandemic Worse – published March 28, 2020 – Article by Louise Aronson, geriatrician and professor of medicine, University of California, San Francisco and author of Elderhood: Redefining Aging, Transforming Medicine, and Reimaging Life
  2. Kaiser Family FoundationKey Questions About the Impact of Coronavirus on Long-Term Care Facilities Over Time – published September 1, 2020 – Just released analysis of COVID-19 cases and deaths in long-term care facilities
  3. Kaiser Family FoundationOverlooked and Undercounted: The Growing Impact of COVID-19 on Assisted Living Facilities – published on September 1, 2020 – Just released analysis of impact of COVID-19 within assisted living facilities
  4. Kaiser Family FoundationState Actions to Sustain Medicaid Long-Term Services and Supports During COVID-19 – published on August 26, 2020
  5. Manatt HealthRecommendations to Strengthen the Resilience of New Jersey’s Nursing Homes in the Wake of COVID-19 – published on June 2, 2020 – Detailed PowerPoint presentation – See especially pages 13, 22-50, 53-54

Download the Tuesday Digest 2: DAM Digest 002.docx

Featured in Issue #1 – August 25, 2020

Download the Tuesday Digest 1: DAM Digest 001.docx